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The invisible smile: living without facial expression

The invisible smile: living without facial expression
The invisible smile: living without facial expression
We are defined by our faces. They give identity but, equally importantly, reveal our moods and emotions through facial expression. So what happens when the face cannot move? This book is about people who live with Möbius Syndrome, which has as its main feature an absence of movement of the muscles of facial expression from birth. People with Möbius cannot smile, frown, or look surprised or sad. Talking and eating are problematic, since their lips do not move. Even looking around is also difficult since the eyes cannot move either.
The book is unique in giving those with Möbius a voice, allowing children and adults with the condition to explain what it is like. These fascinating biographies reveal much about the relations between face and facial expression, and emotional expression and emotional experience which we normally take for granted. The narratives also show the creative ways in which those with Möbius construct their lives and how they come to terms with and express their identities with, and yet, beyond their faces. Some with Möbius have been thought to have learning difficulties and autism, since an impassive immobile face has been assumed to reflect inner cognitive problems. This book criticises such work and asks people to look not only at the face but beyond it to see the person.
Throughout the book, several themes emerge, of which perhaps the most surprising is the reduced emotional experience those with Möbius can have as children and young adults and the journeys they go on as they realise this and then assimilate emotion from the outside in.
mobius syndrome, facial paralysis
9780198566397
Oxford University Press
Cole, Jonathan
d119a5ba-9ca3-43db-9d98-950ca225655d
Spalding, Henrietta
2ae3abab-9d46-4975-922c-87bf8c17ffe0
Cole, Jonathan
d119a5ba-9ca3-43db-9d98-950ca225655d
Spalding, Henrietta
2ae3abab-9d46-4975-922c-87bf8c17ffe0

Cole, Jonathan and Spalding, Henrietta (2008) The invisible smile: living without facial expression , United States, US. Oxford University Press, 256pp.

Record type: Book

Abstract

We are defined by our faces. They give identity but, equally importantly, reveal our moods and emotions through facial expression. So what happens when the face cannot move? This book is about people who live with Möbius Syndrome, which has as its main feature an absence of movement of the muscles of facial expression from birth. People with Möbius cannot smile, frown, or look surprised or sad. Talking and eating are problematic, since their lips do not move. Even looking around is also difficult since the eyes cannot move either.
The book is unique in giving those with Möbius a voice, allowing children and adults with the condition to explain what it is like. These fascinating biographies reveal much about the relations between face and facial expression, and emotional expression and emotional experience which we normally take for granted. The narratives also show the creative ways in which those with Möbius construct their lives and how they come to terms with and express their identities with, and yet, beyond their faces. Some with Möbius have been thought to have learning difficulties and autism, since an impassive immobile face has been assumed to reflect inner cognitive problems. This book criticises such work and asks people to look not only at the face but beyond it to see the person.
Throughout the book, several themes emerge, of which perhaps the most surprising is the reduced emotional experience those with Möbius can have as children and young adults and the journeys they go on as they realise this and then assimilate emotion from the outside in.

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More information

Published date: October 2008
Keywords: mobius syndrome, facial paralysis

Identifiers

Local EPrints ID: 70118
URI: http://eprints.soton.ac.uk/id/eprint/70118
ISBN: 9780198566397
PURE UUID: 2e488955-7bb2-41a0-9e3a-bfcad3c3431f

Catalogue record

Date deposited: 22 Mar 2010
Last modified: 10 Dec 2021 16:29

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Contributors

Author: Jonathan Cole
Author: Henrietta Spalding

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