Healthcare professionals' and researchers' understanding of cancer genetics activities: a qualitative interview study
Healthcare professionals' and researchers' understanding of cancer genetics activities: a qualitative interview study
Aims: to describe individuals’ perceptions of the activities that take place within the cancer genetics clinic, the relationships between these activities and how these relationships are sustained.
Design: qualitative interview study.
Participants: forty individuals involved in carrying out cancer genetics research in either a clinical (n?=?28) or research-only (n?=?12) capacity in the UK.
Findings: interviewees perceive research and clinical practice in the subspecialty of cancer genetics as interdependent. The boundary between research and clinical practice is described as vague or blurred, and this ambiguity is regarded as being sustained by a range of methodological, ethical and economic factors.
The implications of these findings for the “therapeutic misconception” are explored. It is argued that while research participation is seen as having therapeutic benefit for individual patients, the interviewees are not labouring under any misconceptions about the relationship between research and clinical care. It is suggested that concepts such as the “therapeutic misconception” may have less relevance in highly technological specialities that are characterised by a developing evidence base.
113-119
Hallowell, N.
46e75a41-5a17-4e2c-8bc7-d321902d655d
Cooke, S.
d5031b11-137c-4b03-8115-5a1d334bfa62
Crawford, G.
c49ec103-2936-4897-8f25-96abe25b3a9f
Parker, M.
f35e48ca-14b4-4c90-b172-f24c84861250
Lucassen, A.
2eb85efc-c6e8-4c3f-b963-0290f6c038a5
February 2009
Hallowell, N.
46e75a41-5a17-4e2c-8bc7-d321902d655d
Cooke, S.
d5031b11-137c-4b03-8115-5a1d334bfa62
Crawford, G.
c49ec103-2936-4897-8f25-96abe25b3a9f
Parker, M.
f35e48ca-14b4-4c90-b172-f24c84861250
Lucassen, A.
2eb85efc-c6e8-4c3f-b963-0290f6c038a5
Hallowell, N., Cooke, S., Crawford, G., Parker, M. and Lucassen, A.
(2009)
Healthcare professionals' and researchers' understanding of cancer genetics activities: a qualitative interview study.
Journal of Medical Ethics, 35 (2), .
(doi:10.1136/jme.2008.024224).
Abstract
Aims: to describe individuals’ perceptions of the activities that take place within the cancer genetics clinic, the relationships between these activities and how these relationships are sustained.
Design: qualitative interview study.
Participants: forty individuals involved in carrying out cancer genetics research in either a clinical (n?=?28) or research-only (n?=?12) capacity in the UK.
Findings: interviewees perceive research and clinical practice in the subspecialty of cancer genetics as interdependent. The boundary between research and clinical practice is described as vague or blurred, and this ambiguity is regarded as being sustained by a range of methodological, ethical and economic factors.
The implications of these findings for the “therapeutic misconception” are explored. It is argued that while research participation is seen as having therapeutic benefit for individual patients, the interviewees are not labouring under any misconceptions about the relationship between research and clinical care. It is suggested that concepts such as the “therapeutic misconception” may have less relevance in highly technological specialities that are characterised by a developing evidence base.
This record has no associated files available for download.
More information
Published date: February 2009
Identifiers
Local EPrints ID: 73401
URI: http://eprints.soton.ac.uk/id/eprint/73401
ISSN: 1473-4257
PURE UUID: 1662f779-5a6c-491f-b127-258b7653838e
Catalogue record
Date deposited: 08 Mar 2010
Last modified: 14 Mar 2024 02:46
Export record
Altmetrics
Contributors
Author:
N. Hallowell
Author:
S. Cooke
Author:
M. Parker
Download statistics
Downloads from ePrints over the past year. Other digital versions may also be available to download e.g. from the publisher's website.
View more statistics