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Going home to get on with life: patients and carers experiences of being discharged from hospital following a stroke

Going home to get on with life: patients and carers experiences of being discharged from hospital following a stroke
Going home to get on with life: patients and carers experiences of being discharged from hospital following a stroke
Purpose. In this paper we aim to develop the understanding of what constitutes a ‘good’ or ‘poor’ experience in relation to the transition from hospital to home following a stroke.

Method. Semi-structured interviews were carried out with 20 people and 13 carers within one month of being discharged from hospital following a stroke. Interviews covered views of mobility recovery and support from therapy and services. Interviews were transcribed verbatim, coded and analysed in depth in order to explore the discharge process.

Results. Participants described models of recovery, which involved a sense of momentum and getting on with their life. Discharge was successful if: (i) This sense of momentum was maintained, (ii) they felt supported, and (iii) they felt informed about what was happening. Discharge was seen as difficult when: (a) Momentum was perceived to be lost, (b) people did not feel supported, or (c) they felt in the dark about the plans or their recovery.

Conclusions. The discharge experience could be improved by healthcare professionals understanding and exploring patients' individual models of recovery. This would allow professionals to: (a) Access patients concerns, (b) develop programmes addressing these, (c) correct misinterpretations, (d) keep people fully informed, and (e) share and validate the experience, to reduce their sense of isolation.
stroke, discharge, experience, recovery, carer, model
0963-8288
61-72
Ellis-Hill, C.
e1066987-f368-47e7-b746-92deb7d25ed9
Robison, J.
e39bf280-2265-431d-8935-0f528e99c812
Wiles, R.
5bdc597b-716c-4f60-9f45-631ecca25571
McPherson, K.
7c48feb0-824c-46f5-9d7f-78e43cdfcdf9
Hyndman, D.
6b6c65d5-1d03-4a13-9db8-1342cd43f352
Ashburn, A.
818b9ce8-f025-429e-9532-43ee4fd5f991
On Behalf Of The Stroke Association Rehabilitation Research Centre Team‌
Ellis-Hill, C.
e1066987-f368-47e7-b746-92deb7d25ed9
Robison, J.
e39bf280-2265-431d-8935-0f528e99c812
Wiles, R.
5bdc597b-716c-4f60-9f45-631ecca25571
McPherson, K.
7c48feb0-824c-46f5-9d7f-78e43cdfcdf9
Hyndman, D.
6b6c65d5-1d03-4a13-9db8-1342cd43f352
Ashburn, A.
818b9ce8-f025-429e-9532-43ee4fd5f991

Ellis-Hill, C., Robison, J., Wiles, R., McPherson, K., Hyndman, D. and Ashburn, A. , On Behalf Of The Stroke Association Rehabilitation Research Centre Team‌ (2009) Going home to get on with life: patients and carers experiences of being discharged from hospital following a stroke. Disability and Rehabilitation, 31 (2), 61-72. (doi:10.1080/09638280701775289).

Record type: Article

Abstract

Purpose. In this paper we aim to develop the understanding of what constitutes a ‘good’ or ‘poor’ experience in relation to the transition from hospital to home following a stroke.

Method. Semi-structured interviews were carried out with 20 people and 13 carers within one month of being discharged from hospital following a stroke. Interviews covered views of mobility recovery and support from therapy and services. Interviews were transcribed verbatim, coded and analysed in depth in order to explore the discharge process.

Results. Participants described models of recovery, which involved a sense of momentum and getting on with their life. Discharge was successful if: (i) This sense of momentum was maintained, (ii) they felt supported, and (iii) they felt informed about what was happening. Discharge was seen as difficult when: (a) Momentum was perceived to be lost, (b) people did not feel supported, or (c) they felt in the dark about the plans or their recovery.

Conclusions. The discharge experience could be improved by healthcare professionals understanding and exploring patients' individual models of recovery. This would allow professionals to: (a) Access patients concerns, (b) develop programmes addressing these, (c) correct misinterpretations, (d) keep people fully informed, and (e) share and validate the experience, to reduce their sense of isolation.

Full text not available from this repository.

More information

Published date: 2009
Keywords: stroke, discharge, experience, recovery, carer, model

Identifiers

Local EPrints ID: 80147
URI: https://eprints.soton.ac.uk/id/eprint/80147
ISSN: 0963-8288
PURE UUID: 67700b7a-bb5f-4b82-be72-e477519eaefc
ORCID for D. Hyndman: ORCID iD orcid.org/0000-0003-4449-1414

Catalogue record

Date deposited: 24 Mar 2010
Last modified: 19 Nov 2019 01:49

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Contributors

Author: C. Ellis-Hill
Author: J. Robison
Author: R. Wiles
Author: K. McPherson
Author: D. Hyndman ORCID iD
Author: A. Ashburn

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