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Juggling roles and expectations: dilemmas faced by women talking to relatives about cancer and genetic testing

Foster, C., Watson, M., Moynihan, C., Arden-Jones, A. and Eeles, R (2004) Juggling roles and expectations: dilemmas faced by women talking to relatives about cancer and genetic testing Psychology and Health, 19, (4), pp. 439-455. (doi:10.1080/08870440410001684168).

Record type: Article

Abstract

Health professionals do not inform their patients' kin about BRCA1/2 test results or genetic testing without their written consent. Thus, the onus is on women attending genetic counselling to talk to relatives about the family history and their potential increased risk. This communication process within the family is largely unexplored and provides the focus of the present study. Fifteen healthy women attending a genetics clinic for predictive testing were interviewed prior to receiving their test result and again 6 months later. A grounded theory approach was used. Findings illustrate the dilemmas women faced in juggling social roles and expectations, which had an impact on communication within the family in the context of predictive genetic testing. Tensions between responsibilities towards themselves and others and their fulfilment of social roles had an impact on who women informed and on how they did so. These factors should be considered when assigning patients the role of information provider.

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More information

Published date: August 2004
Keywords: cancer and genetic testing, predictive genetic testing, communication, family, cancer
Organisations: Faculty of Health Sciences

Identifiers

Local EPrints ID: 9610
URI: http://eprints.soton.ac.uk/id/eprint/9610
ISSN: 0887-0446
PURE UUID: 2e5d3ebc-c5a7-49e6-8876-7d2592a3315b
ORCID for C. Foster: ORCID iD orcid.org/0000-0002-4703-8378

Catalogue record

Date deposited: 20 Oct 2004
Last modified: 17 Jul 2017 17:09

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Contributors

Author: C. Foster ORCID iD
Author: M. Watson
Author: C. Moynihan
Author: A. Arden-Jones
Author: R Eeles

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