Uncertainty prior to pulmonary rehabilitation in primary care: a phenomenological qualitative study in patients with chronic obstructive pulmonary disease
Uncertainty prior to pulmonary rehabilitation in primary care: a phenomenological qualitative study in patients with chronic obstructive pulmonary disease
Pulmonary rehabilitation (PR) is recommended for patients functionally restricted by chronic obstructive pulmonary disease (COPD). However, attendance and adherence to PR remains suboptimal. No previous research has explored COPD patient experiences during the key period from referral to initiation of PR in the United Kingdom. This research aimed to explore the lived experience of COPD patients referred to PR programmes prior to participation. COPD participants were recruited from referrals to two community PR programmes. Semi-structured interviews with COPD participants occurred following PR referral, but prior to programme initiation. Data were analyzed using applied interpretive phenomenology. Twenty-five COPD participants aged 42–90 were interviewed. ‘Uncertainty’ affected participants throughout their lived experience of COPD that negatively impacted illness perceptions, PR perceptions and increased participant’s panic and anger. Participants who perceived COPD less as a chronic condition and more as a cyclical process experienced fewer feelings of panic or anger. The experience of uncertainty was disabling for these COPD participants. Recognition of the role that uncertainty plays in patients with COPD is the first step towards developing interventions focused on reducing this uncertainty, thereby reducing the burden of the disease for the individual patient and facilitating PR attendance.
Lewis, Adam
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Bruton, Anne
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Donovan-Hall, Maggie
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Lewis, Adam
92717168-ccc3-4540-8150-6e42198ae454
Bruton, Anne
9f8b6076-6558-4d99-b7c8-72b03796ed95
Donovan-Hall, Maggie
5f138055-2162-4982-846c-5c92411055e0
Lewis, Adam, Bruton, Anne and Donovan-Hall, Maggie
(2014)
Uncertainty prior to pulmonary rehabilitation in primary care: a phenomenological qualitative study in patients with chronic obstructive pulmonary disease.
Chronic Respiratory Disease.
(doi:10.1177/1479972314539981).
Abstract
Pulmonary rehabilitation (PR) is recommended for patients functionally restricted by chronic obstructive pulmonary disease (COPD). However, attendance and adherence to PR remains suboptimal. No previous research has explored COPD patient experiences during the key period from referral to initiation of PR in the United Kingdom. This research aimed to explore the lived experience of COPD patients referred to PR programmes prior to participation. COPD participants were recruited from referrals to two community PR programmes. Semi-structured interviews with COPD participants occurred following PR referral, but prior to programme initiation. Data were analyzed using applied interpretive phenomenology. Twenty-five COPD participants aged 42–90 were interviewed. ‘Uncertainty’ affected participants throughout their lived experience of COPD that negatively impacted illness perceptions, PR perceptions and increased participant’s panic and anger. Participants who perceived COPD less as a chronic condition and more as a cyclical process experienced fewer feelings of panic or anger. The experience of uncertainty was disabling for these COPD participants. Recognition of the role that uncertainty plays in patients with COPD is the first step towards developing interventions focused on reducing this uncertainty, thereby reducing the burden of the disease for the individual patient and facilitating PR attendance.
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e-pub ahead of print date: June 2014
Organisations:
Faculty of Health Sciences
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Local EPrints ID: 366572
URI: http://eprints.soton.ac.uk/id/eprint/366572
ISSN: 1479-9723
PURE UUID: d7d0298d-4f44-4ec3-9fd6-a84844858217
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Date deposited: 07 Jul 2014 11:08
Last modified: 15 Mar 2024 02:49
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Author:
Adam Lewis
Author:
Anne Bruton
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