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The prevalence of self-reported lower limb and foot health problems experienced by participants with systemic lupus erythematosus: Results of a UK national survey

The prevalence of self-reported lower limb and foot health problems experienced by participants with systemic lupus erythematosus: Results of a UK national survey
The prevalence of self-reported lower limb and foot health problems experienced by participants with systemic lupus erythematosus: Results of a UK national survey
Objective: The main aim of this survey was to determine the frequency of self-reported lower limb or foot and ankle complications experienced by participants with SLE. A secondary aim was to determine the frequency of treatments that have been received or that participants with SLE may like to receive if offered.

Method: A quantitative, cross-sectional, self-reported survey design was utilised. The developed survey was checked for face and content validity prior to patient partner cognitive debriefing in order to ensure usability, understanding of the process of completion and of the questions posed. The full protocol for survey development has been published previously.

Results: This is the first comprehensive national UK survey of lower limb and foot health problems reported by participants with SLE. A high prevalence of vascular, dermatological and musculoskeletal complications was reported by survey respondents. Additionally, whilst the relative prevalence of sensory loss was low, a quarter of people reported having had a fall related to changes in foot sensation demonstrating a previously unknown rate and cause of falls.

Conclusion: Complications related to vascular, dermatological and musculoskeletal health are identified as particularly prevalent in participants with SLE. Further, there is a suggestion that the provision of interventions to maintain lower limb health is highly varied and lacks national standardisation, despite there being a strong indication of participant reported need. The findings of this work can be used to inform care guideline development in addition to identifying areas for future research.
1-13
Cherry, L.
95256156-ce8c-4e7c-b04d-b6e459232441
Alcacer-Pitarch, B.
418cf67a-6dee-4cc5-bdae-202eb2032dca
Hopkinson, N.
ca6fcbb9-0039-41d0-a273-99a31cc7c6f3
Teh, L.S.
622ee915-d7d6-4ebc-875a-1e1af5f91cec
Vital, E.M.
dc74e597-37b2-4764-be7e-f51f4595aa36
Edwards, C.J.
dcb27fec-75ea-4575-a844-3588bcf14106
Blake, A.
8b541d78-7fe6-4315-b758-af9878fce31f
Williams, A.E.
aae951a7-0d89-43f0-94d0-f266c852c6d0
Cherry, L.
95256156-ce8c-4e7c-b04d-b6e459232441
Alcacer-Pitarch, B.
418cf67a-6dee-4cc5-bdae-202eb2032dca
Hopkinson, N.
ca6fcbb9-0039-41d0-a273-99a31cc7c6f3
Teh, L.S.
622ee915-d7d6-4ebc-875a-1e1af5f91cec
Vital, E.M.
dc74e597-37b2-4764-be7e-f51f4595aa36
Edwards, C.J.
dcb27fec-75ea-4575-a844-3588bcf14106
Blake, A.
8b541d78-7fe6-4315-b758-af9878fce31f
Williams, A.E.
aae951a7-0d89-43f0-94d0-f266c852c6d0

Cherry, L., Alcacer-Pitarch, B., Hopkinson, N., Teh, L.S., Vital, E.M., Edwards, C.J., Blake, A. and Williams, A.E. (2016) The prevalence of self-reported lower limb and foot health problems experienced by participants with systemic lupus erythematosus: Results of a UK national survey. Lupus, 1-13.

Record type: Article

Abstract

Objective: The main aim of this survey was to determine the frequency of self-reported lower limb or foot and ankle complications experienced by participants with SLE. A secondary aim was to determine the frequency of treatments that have been received or that participants with SLE may like to receive if offered.

Method: A quantitative, cross-sectional, self-reported survey design was utilised. The developed survey was checked for face and content validity prior to patient partner cognitive debriefing in order to ensure usability, understanding of the process of completion and of the questions posed. The full protocol for survey development has been published previously.

Results: This is the first comprehensive national UK survey of lower limb and foot health problems reported by participants with SLE. A high prevalence of vascular, dermatological and musculoskeletal complications was reported by survey respondents. Additionally, whilst the relative prevalence of sensory loss was low, a quarter of people reported having had a fall related to changes in foot sensation demonstrating a previously unknown rate and cause of falls.

Conclusion: Complications related to vascular, dermatological and musculoskeletal health are identified as particularly prevalent in participants with SLE. Further, there is a suggestion that the provision of interventions to maintain lower limb health is highly varied and lacks national standardisation, despite there being a strong indication of participant reported need. The findings of this work can be used to inform care guideline development in addition to identifying areas for future research.

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Accepted/In Press date: 3 August 2016
Published date: 10 October 2016
Organisations: Faculty of Health Sciences

Identifiers

Local EPrints ID: 399661
URI: http://eprints.soton.ac.uk/id/eprint/399661
PURE UUID: bf1686c3-88bf-4f48-a35a-b607027657aa
ORCID for L. Cherry: ORCID iD orcid.org/0000-0002-3165-1004

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Date deposited: 23 Aug 2016 10:24
Last modified: 15 Mar 2024 05:50

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Contributors

Author: L. Cherry ORCID iD
Author: B. Alcacer-Pitarch
Author: N. Hopkinson
Author: L.S. Teh
Author: E.M. Vital
Author: C.J. Edwards
Author: A. Blake
Author: A.E. Williams

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