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Does age matter?: A comparison of health‐related quality of life issues of adolescents and young adults with cancer

Does age matter?: A comparison of health‐related quality of life issues of adolescents and young adults with cancer
Does age matter?: A comparison of health‐related quality of life issues of adolescents and young adults with cancer
Objective:
Health‐related quality of life (HRQoL) concerns of adolescents and young adults (AYAs) aged 14–25 years were compared with those of older adults (26–60 years) with cancer.

Methods:
AYAs and older adults receiving curative intent treatment or supportive palliative care for cancer were recruited from eight research centres across Europe. Participants used a rating scale to score the relevance and importance of a list of 77 issues covering 10 areas of HRQoL concern: symptoms; activity restrictions; social; emotional; body image; self‐appraisals; outlook on life; lifestyle; treatment‐related and life beyond treatment.

Results:
HRQoL issues were reviewed by 33 AYAs and 25 older adults. Several issues were recognised as relevant and important across all age groups: symptoms, emotional impact, outlook on life, lifestyle and treatment‐related. A number of issues were more relevant or important to AYAs including interrupted education, greater motivation to achieve academic goals, increased maturity, boredom, fertility and change in living situation.

Conclusion:
While there is overlap in several of the HRQoL concerns across the age span, it is important that HRQoL measures used with AYAs capture the diverse and unique psychosocial aspects of this developmental stage.
0961-5423
Sodergren, Samantha
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Husson, Olga
37964f59-bb82-46c7-8f67-88c45ba50463
Rohde, Gudrun E.
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Tomasewska, Iwona M.
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Griffiths, Helen
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Pessing, Aya
bcf1a958-8db7-4dac-9f19-56697f289b89
Yarom, Noam
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Hooker, Louise
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Din, Amy
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Darlington, Anne-Sophie
472fcfc9-160b-4344-8113-8dd8760ff962
Sodergren, Samantha
d66fc3fa-2c98-403d-8ae5-410ef95de46e
Husson, Olga
37964f59-bb82-46c7-8f67-88c45ba50463
Rohde, Gudrun E.
55977476-2040-476a-a539-dbc7c8644da4
Tomasewska, Iwona M.
42b2c78a-a715-4f23-8efb-3121f9eb3c37
Griffiths, Helen
47271c54-e829-4795-aa55-233273e787b9
Pessing, Aya
bcf1a958-8db7-4dac-9f19-56697f289b89
Yarom, Noam
c6555d5e-73d0-44fb-9036-1181336fa465
Hooker, Louise
d27a96d7-d192-4f14-b331-c8d73610924f
Din, Amy
4ca3c758-ec41-4c76-baf6-95ad788f5336
Darlington, Anne-Sophie
472fcfc9-160b-4344-8113-8dd8760ff962

Sodergren, Samantha, Husson, Olga, Rohde, Gudrun E., Tomasewska, Iwona M., Griffiths, Helen, Pessing, Aya, Yarom, Noam, Hooker, Louise, Din, Amy and Darlington, Anne-Sophie (2018) Does age matter?: A comparison of health‐related quality of life issues of adolescents and young adults with cancer. European Journal of Cancer Care, 27 (6), [e12980]. (doi:10.1111/ecc.12980).

Record type: Article

Abstract

Objective:
Health‐related quality of life (HRQoL) concerns of adolescents and young adults (AYAs) aged 14–25 years were compared with those of older adults (26–60 years) with cancer.

Methods:
AYAs and older adults receiving curative intent treatment or supportive palliative care for cancer were recruited from eight research centres across Europe. Participants used a rating scale to score the relevance and importance of a list of 77 issues covering 10 areas of HRQoL concern: symptoms; activity restrictions; social; emotional; body image; self‐appraisals; outlook on life; lifestyle; treatment‐related and life beyond treatment.

Results:
HRQoL issues were reviewed by 33 AYAs and 25 older adults. Several issues were recognised as relevant and important across all age groups: symptoms, emotional impact, outlook on life, lifestyle and treatment‐related. A number of issues were more relevant or important to AYAs including interrupted education, greater motivation to achieve academic goals, increased maturity, boredom, fertility and change in living situation.

Conclusion:
While there is overlap in several of the HRQoL concerns across the age span, it is important that HRQoL measures used with AYAs capture the diverse and unique psychosocial aspects of this developmental stage.

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Does age matter? A comparison of health‐related quality of life issues of adolescents and young adults with cancer - Accepted Manuscript
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Accepted/In Press date: 20 November 2018
e-pub ahead of print date: 28 November 2018
Published date: November 2018

Identifiers

Local EPrints ID: 426863
URI: http://eprints.soton.ac.uk/id/eprint/426863
ISSN: 0961-5423
PURE UUID: 75861b49-b078-4047-b03e-00fb2f5670a4
ORCID for Samantha Sodergren: ORCID iD orcid.org/0000-0001-8755-146X

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Date deposited: 14 Dec 2018 17:30
Last modified: 16 Mar 2024 07:24

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Contributors

Author: Olga Husson
Author: Gudrun E. Rohde
Author: Iwona M. Tomasewska
Author: Helen Griffiths
Author: Aya Pessing
Author: Noam Yarom
Author: Louise Hooker
Author: Amy Din

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