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Developing a digital intervention for cancer survivors: An evidence, theory and person-based approach

Developing a digital intervention for cancer survivors: An evidence, theory and person-based approach
Developing a digital intervention for cancer survivors: An evidence, theory and person-based approach
This paper illustrates a rigorous approach to developing digital interventions using an evidence-, theory- and person-based approach. Intervention planning included a rapid scoping review which identified cancer survivors’ needs, including barriers and facilitators to intervention success. Review evidence (N=49 papers) informed the intervention’s Guiding Principles, theory-based behavioural analysis and logic model. The intervention was optimised based on feedback on a prototype intervention through interviews (N=96) with cancer survivors and focus groups with NHS staff and cancer charity workers (N=31). Interviews with cancer survivors highlighted barriers to engagement, such as concerns about physical activity worsening fatigue. Focus groups highlighted concerns about support appointment length and how to support distressed participants. Feedback informed intervention modifications, to maximise acceptability, feasibility and likelihood of behaviour change. Our systematic method for understanding user views enabled us to anticipate and address important barriers to engagement. This methodology may be useful to others developing digital interventions.
Cancer, Cancer Survivors, Digital Intervention, Intervention development, Person-Based Approach, Qualitative methods, Quality of Life, Oncology
2398-6352
1-13
Bradbury, Katherine
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Steele, Mary
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Corbett, Teresa
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Geraghty, Adam
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Krusche, Adele
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Heber, Elena D.
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Easton, Stephanie
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Cheetham-Blake, Tara
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Slodkowska-Barabasz, Joanna
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Muller, Andre Matthias
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Wilde, Laura J.
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Smith, Kirsten
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Payne, Liz
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Singh, Karmpaul
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Bacon, Roger
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Burford, Tamsin
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Summers, Kevin
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Turner, Lesley
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Richardson, Alison
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Watson, Eila
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Foster, Claire
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Little, Paul
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Yardley, Lucy
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Bradbury, Katherine
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Steele, Mary
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Corbett, Teresa
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Geraghty, Adam
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Krusche, Adele
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Heber, Elena D.
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Easton, Stephanie
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Cheetham-Blake, Tara
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Slodkowska-Barabasz, Joanna
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Muller, Andre Matthias
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Wilde, Laura J.
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Smith, Kirsten
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Payne, Liz
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Singh, Karmpaul
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Bacon, Roger
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Burford, Tamsin
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Summers, Kevin
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Turner, Lesley
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Richardson, Alison
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Watson, Eila
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Foster, Claire
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Little, Paul
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Yardley, Lucy
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Bradbury, Katherine, Steele, Mary, Corbett, Teresa, Geraghty, Adam, Krusche, Adele, Heber, Elena D., Easton, Stephanie, Cheetham-Blake, Tara, Slodkowska-Barabasz, Joanna, Muller, Andre Matthias, Wilde, Laura J., Smith, Kirsten, Payne, Liz, Singh, Karmpaul, Bacon, Roger, Burford, Tamsin, Summers, Kevin, Turner, Lesley, Richardson, Alison, Watson, Eila, Foster, Claire, Little, Paul and Yardley, Lucy (2019) Developing a digital intervention for cancer survivors: An evidence, theory and person-based approach. npj Digital Medicine, 1-13. (doi:10.1038/s41746-019-0163-4).

Record type: Article

Abstract

This paper illustrates a rigorous approach to developing digital interventions using an evidence-, theory- and person-based approach. Intervention planning included a rapid scoping review which identified cancer survivors’ needs, including barriers and facilitators to intervention success. Review evidence (N=49 papers) informed the intervention’s Guiding Principles, theory-based behavioural analysis and logic model. The intervention was optimised based on feedback on a prototype intervention through interviews (N=96) with cancer survivors and focus groups with NHS staff and cancer charity workers (N=31). Interviews with cancer survivors highlighted barriers to engagement, such as concerns about physical activity worsening fatigue. Focus groups highlighted concerns about support appointment length and how to support distressed participants. Feedback informed intervention modifications, to maximise acceptability, feasibility and likelihood of behaviour change. Our systematic method for understanding user views enabled us to anticipate and address important barriers to engagement. This methodology may be useful to others developing digital interventions.

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Developing a digital intervention for cancer survivors - Accepted Manuscript
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Accepted/In Press date: 9 August 2019
e-pub ahead of print date: 2 September 2019
Keywords: Cancer, Cancer Survivors, Digital Intervention, Intervention development, Person-Based Approach, Qualitative methods, Quality of Life, Oncology

Identifiers

Local EPrints ID: 433500
URI: http://eprints.soton.ac.uk/id/eprint/433500
ISSN: 2398-6352
PURE UUID: 93736ffb-084b-45bb-8596-3c9b6dbd3221
ORCID for Katherine Bradbury: ORCID iD orcid.org/0000-0001-5513-7571
ORCID for Mary Steele: ORCID iD orcid.org/0000-0003-2595-3855
ORCID for Teresa Corbett: ORCID iD orcid.org/0000-0002-5620-5377
ORCID for Adam Geraghty: ORCID iD orcid.org/0000-0001-7984-8351
ORCID for Liz Payne: ORCID iD orcid.org/0000-0002-6594-5668
ORCID for Alison Richardson: ORCID iD orcid.org/0000-0003-3127-5755
ORCID for Claire Foster: ORCID iD orcid.org/0000-0002-4703-8378
ORCID for Paul Little: ORCID iD orcid.org/0000-0003-3664-1873
ORCID for Lucy Yardley: ORCID iD orcid.org/0000-0002-3853-883X

Catalogue record

Date deposited: 23 Aug 2019 16:30
Last modified: 12 Jul 2024 04:07

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Contributors

Author: Mary Steele ORCID iD
Author: Teresa Corbett ORCID iD
Author: Adam Geraghty ORCID iD
Author: Adele Krusche
Author: Elena D. Heber
Author: Stephanie Easton
Author: Tara Cheetham-Blake
Author: Andre Matthias Muller
Author: Laura J. Wilde
Author: Kirsten Smith
Author: Liz Payne ORCID iD
Author: Karmpaul Singh
Author: Roger Bacon
Author: Tamsin Burford
Author: Kevin Summers
Author: Lesley Turner
Author: Eila Watson
Author: Claire Foster ORCID iD
Author: Paul Little ORCID iD
Author: Lucy Yardley ORCID iD

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