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Barriers and facilitators experienced by patients, carers and healthcare professionals when managing symptoms in infants, children and young people at end-of-life: a mixed methods systematic review protocol

Barriers and facilitators experienced by patients, carers and healthcare professionals when managing symptoms in infants, children and young people at end-of-life: a mixed methods systematic review protocol
Barriers and facilitators experienced by patients, carers and healthcare professionals when managing symptoms in infants, children and young people at end-of-life: a mixed methods systematic review protocol
Introduction. This protocol describes the objective and methods of a systematic review of barriers and facilitators experienced by patients, carers and healthcare professionals when managing symptoms in infants, children and young people (ICYP) at end-of-life.Methods and analysis. The Cochrane Library, PROSPERO, CINAHL, MEDLINE, PsycINFO, Web of Science Core Collection, ProQuest Dissertations & Theses Database, Evidence Search and OpenGrey will be electronically searched. Reference screening of relevant reviews and inquiries to researchers in the field will be undertaken. Studies will be selected if they apply qualitative, quantitative or mixed-methods designs to explore barriers and facilitators experienced by patients, carers and healthcare professionals when managing symptoms in ICYP at end-of-life. Articles will be screened by title and abstract by one reviewer with a second reviewer assessing 10% of the articles. Both reviewers will read and screen all remaining potentially relevant articles. For included articles, one reviewer will extract study characteristics and one will check this. Both reviewers will undertake independent quality assessments of included studies using established and appropriate checklists including The Critical Appraisal Skills Programme Qualitative Checklist; The evaluative criteria of credibility, transferability, dependability and confirmability; The Quality Assessment Tool for Quantitative Studies, and The Mixed Methods Appraisal Tool. Data synthesis methods will be decided after data extraction and assessment. Ethics and dissemination. This review will inform our understanding of symptom management in ICYP at end-of-life. The findings will be reported in a peer-reviewed journal and presented at conferences. The study raises no ethical issues.Trial registration number CRD42019124797.
2044-6055
1-6
Greenfield, Katie
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Holley, Simone
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Schoth, Daniel
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Harrop, Emily
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Howard, Richard F.
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Bayliss, Julie
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Jassal, Satbir
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Johnson, Margaret
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Wong, Ian
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Liossi, Christina
fd401ad6-581a-4a31-a60b-f8671ffd3558
Greenfield, Katie
070c2fb7-b7f1-4842-a9a5-db04252a7ed1
Holley, Simone
4921ebd8-b6fd-4d22-80b8-fe2aa7ec4c5a
Schoth, Daniel
73f3036e-b8cb-40b2-9466-e8e0f341fdd5
Harrop, Emily
01114a0a-f1c8-4d71-aaff-c50365561ddd
Howard, Richard F.
4ba52e52-9d22-4769-9e3e-e99a8acd012d
Bayliss, Julie
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Jassal, Satbir
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Johnson, Margaret
bedadb5d-e028-4ec7-89b8-cdfa27d3e6a2
Wong, Ian
978915c7-9bbf-4449-88ff-f9d220256a8f
Liossi, Christina
fd401ad6-581a-4a31-a60b-f8671ffd3558

Greenfield, Katie, Holley, Simone, Schoth, Daniel, Harrop, Emily, Howard, Richard F., Bayliss, Julie, Jassal, Satbir, Johnson, Margaret, Wong, Ian and Liossi, Christina (2019) Barriers and facilitators experienced by patients, carers and healthcare professionals when managing symptoms in infants, children and young people at end-of-life: a mixed methods systematic review protocol. BMJ Open, 9, 1-6, [e030566]. (doi:10.1136/bmjopen-2019-030566).

Record type: Article

Abstract

Introduction. This protocol describes the objective and methods of a systematic review of barriers and facilitators experienced by patients, carers and healthcare professionals when managing symptoms in infants, children and young people (ICYP) at end-of-life.Methods and analysis. The Cochrane Library, PROSPERO, CINAHL, MEDLINE, PsycINFO, Web of Science Core Collection, ProQuest Dissertations & Theses Database, Evidence Search and OpenGrey will be electronically searched. Reference screening of relevant reviews and inquiries to researchers in the field will be undertaken. Studies will be selected if they apply qualitative, quantitative or mixed-methods designs to explore barriers and facilitators experienced by patients, carers and healthcare professionals when managing symptoms in ICYP at end-of-life. Articles will be screened by title and abstract by one reviewer with a second reviewer assessing 10% of the articles. Both reviewers will read and screen all remaining potentially relevant articles. For included articles, one reviewer will extract study characteristics and one will check this. Both reviewers will undertake independent quality assessments of included studies using established and appropriate checklists including The Critical Appraisal Skills Programme Qualitative Checklist; The evaluative criteria of credibility, transferability, dependability and confirmability; The Quality Assessment Tool for Quantitative Studies, and The Mixed Methods Appraisal Tool. Data synthesis methods will be decided after data extraction and assessment. Ethics and dissemination. This review will inform our understanding of symptom management in ICYP at end-of-life. The findings will be reported in a peer-reviewed journal and presented at conferences. The study raises no ethical issues.Trial registration number CRD42019124797.

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More information

Accepted/In Press date: 21 June 2019
e-pub ahead of print date: 27 July 2019

Identifiers

Local EPrints ID: 433560
URI: http://eprints.soton.ac.uk/id/eprint/433560
ISSN: 2044-6055
PURE UUID: 077d16c9-e324-42f6-b57b-78a558340bc4
ORCID for Katie Greenfield: ORCID iD orcid.org/0000-0001-8827-6543
ORCID for Christina Liossi: ORCID iD orcid.org/0000-0003-0627-6377

Catalogue record

Date deposited: 27 Aug 2019 16:30
Last modified: 07 Oct 2020 02:23

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Contributors

Author: Simone Holley
Author: Daniel Schoth
Author: Emily Harrop
Author: Richard F. Howard
Author: Julie Bayliss
Author: Satbir Jassal
Author: Margaret Johnson
Author: Ian Wong

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