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Participants’ experiences of and perceived value regarding different support types for long-term condition self-management programmes

Participants’ experiences of and perceived value regarding different support types for long-term condition self-management programmes
Participants’ experiences of and perceived value regarding different support types for long-term condition self-management programmes
Objectives
Health professional-led group programmes are a common form of long-term condition self-management support. Much research has focused on clinical outcomes of group participation, yet there is limited research on how group participants perceive and experience the support they receive. We aim to identify the different types of support that participants receive from both facilitators and other participants, and how they value this support.

Methods
Semi-structured interviews were conducted with 20 participants taking part in a self-management group programme for a long-term condition (obesity, type 2 diabetes or chronic obstructive pulmonary disease). Data pertaining to support types were deductively identified through a social support framework prior to interpretive thematic analysis.

Results
Participants identified information and emotional support from both facilitators and other participants as complementary yet distinct. Facilitators’ support came from professional training and other participants’ support reflected the contextual, lived experience. Professional interactions were prioritised, constraining opportunities for participant–participant support to be received and exchanged.

Discussion
We identified a key gap in how self-management support is enacted in groups. Engaging participants to share experiential knowledge will make group support more relevant and mutually beneficial to participants living with a long-term condition.
1742-3953
Hughes, Stephen
3e14ee79-db73-4e5a-8746-c7f3f30bfd84
Lewis, Sophie
e033d675-061d-4ad4-a57a-95b4ccf4edcd
Willis, Karen
0c02e3e5-6e24-4a75-8a2d-3168eb86b390
Rogers, Anne
105eeebc-1899-4850-950e-385a51738eb7
Wyke, Sally
ad68c72b-485d-48c4-b083-4eb59e09c79a
Smith, Lorraine
415a2f5e-6bce-4beb-b55d-1e14bc645ce5
Hughes, Stephen
3e14ee79-db73-4e5a-8746-c7f3f30bfd84
Lewis, Sophie
e033d675-061d-4ad4-a57a-95b4ccf4edcd
Willis, Karen
0c02e3e5-6e24-4a75-8a2d-3168eb86b390
Rogers, Anne
105eeebc-1899-4850-950e-385a51738eb7
Wyke, Sally
ad68c72b-485d-48c4-b083-4eb59e09c79a
Smith, Lorraine
415a2f5e-6bce-4beb-b55d-1e14bc645ce5

Hughes, Stephen, Lewis, Sophie, Willis, Karen, Rogers, Anne, Wyke, Sally and Smith, Lorraine (2019) Participants’ experiences of and perceived value regarding different support types for long-term condition self-management programmes. Chronic Illness. (doi:10.1177/1742395319869437).

Record type: Article

Abstract

Objectives
Health professional-led group programmes are a common form of long-term condition self-management support. Much research has focused on clinical outcomes of group participation, yet there is limited research on how group participants perceive and experience the support they receive. We aim to identify the different types of support that participants receive from both facilitators and other participants, and how they value this support.

Methods
Semi-structured interviews were conducted with 20 participants taking part in a self-management group programme for a long-term condition (obesity, type 2 diabetes or chronic obstructive pulmonary disease). Data pertaining to support types were deductively identified through a social support framework prior to interpretive thematic analysis.

Results
Participants identified information and emotional support from both facilitators and other participants as complementary yet distinct. Facilitators’ support came from professional training and other participants’ support reflected the contextual, lived experience. Professional interactions were prioritised, constraining opportunities for participant–participant support to be received and exchanged.

Discussion
We identified a key gap in how self-management support is enacted in groups. Engaging participants to share experiential knowledge will make group support more relevant and mutually beneficial to participants living with a long-term condition.

Text
Participants’ experiences of and perceived value regarding different support types for long-term condition self-management programmes - Accepted Manuscript
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More information

Accepted/In Press date: 9 July 2019
e-pub ahead of print date: 19 August 2019

Identifiers

Local EPrints ID: 436152
URI: http://eprints.soton.ac.uk/id/eprint/436152
ISSN: 1742-3953
PURE UUID: a782dd94-1c62-40ef-ba5b-f8430d25ea23

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Date deposited: 29 Nov 2019 17:30
Last modified: 27 Apr 2022 06:45

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Contributors

Author: Stephen Hughes
Author: Sophie Lewis
Author: Karen Willis
Author: Anne Rogers
Author: Sally Wyke
Author: Lorraine Smith

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