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Management of nystagmus in children: a review of the literature and current practice in UK specialist services

Management of nystagmus in children: a review of the literature and current practice in UK specialist services
Management of nystagmus in children: a review of the literature and current practice in UK specialist services

Nystagmus is an eye movement disorder characterised by abnormal, involuntary rhythmic oscillations of one or both eyes, initiated by a slow phase. It is not uncommon in the UK and regularly seen in paediatric ophthalmology and adult general/strabismus clinics. In some cases, it occurs in isolation, and in others, it occurs as part of a multisystem disorder, severe visual impairment or neurological disorder. Similarly, in some cases, visual acuity can be normal and in others can be severely degraded. Furthermore, the impact on vision goes well beyond static acuity alone, is rarely measured and may vary on a minute-to-minute, day-to-day or month-to-month basis. For these reasons, management of children with nystagmus in the UK is varied, and patients report hugely different experiences and investigations. In this review, we hope to shine a light on the current management of children with nystagmus across five specialist centres in the UK in order to present, for the first time, a consensus on investigation and clinical management.

0950-222X
1515-1534
Self, J. E.
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Lee, Helena
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Norman, Chelsea
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Dunn, Matt
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Gottlob, Irene
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Erichsen, J.
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Griffiths, H.J
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Harris, C.M
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Owen, Julie
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Self, J. E.
0f6efc58-ae24-4667-b8d6-6fafa849e389
Lee, Helena
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Norman, Chelsea
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Dunn, Matt
fab9d2ea-2428-4c2d-8c72-7c07515b7dfc
Gottlob, Irene
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Erichsen, J.
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Griffiths, H.J
70eb2bea-383a-4a10-bd01-826bc07f1a11
Harris, C.M
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Owen, Julie
376e8e62-0058-4846-b60d-11ba4a0987c3

Self, J. E., Lee, Helena, Norman, Chelsea, Dunn, Matt, Gottlob, Irene, Erichsen, J., Griffiths, H.J, Harris, C.M and Owen, Julie (2020) Management of nystagmus in children: a review of the literature and current practice in UK specialist services. Eye (Basingstoke), 34 (9), 1515-1534. (doi:10.1038/s41433-019-0741-3).

Record type: Review

Abstract

Nystagmus is an eye movement disorder characterised by abnormal, involuntary rhythmic oscillations of one or both eyes, initiated by a slow phase. It is not uncommon in the UK and regularly seen in paediatric ophthalmology and adult general/strabismus clinics. In some cases, it occurs in isolation, and in others, it occurs as part of a multisystem disorder, severe visual impairment or neurological disorder. Similarly, in some cases, visual acuity can be normal and in others can be severely degraded. Furthermore, the impact on vision goes well beyond static acuity alone, is rarely measured and may vary on a minute-to-minute, day-to-day or month-to-month basis. For these reasons, management of children with nystagmus in the UK is varied, and patients report hugely different experiences and investigations. In this review, we hope to shine a light on the current management of children with nystagmus across five specialist centres in the UK in order to present, for the first time, a consensus on investigation and clinical management.

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FINAL paper submitted to EYE 16-10-19 - Accepted Manuscript
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Accepted/In Press date: 24 November 2019
Published date: 1 September 2020
Additional Information: Publisher Copyright: © 2020, The Author(s).

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Local EPrints ID: 437374
URI: http://eprints.soton.ac.uk/id/eprint/437374
ISSN: 0950-222X
PURE UUID: 92488860-714c-4651-8af7-c6f3c2c7f4ee
ORCID for J. E. Self: ORCID iD orcid.org/0000-0002-1030-9963
ORCID for Helena Lee: ORCID iD orcid.org/0000-0002-2573-9536

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Date deposited: 29 Jan 2020 17:30
Last modified: 06 Jul 2022 04:01

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Contributors

Author: J. E. Self ORCID iD
Author: Helena Lee ORCID iD
Author: Chelsea Norman
Author: Matt Dunn
Author: Irene Gottlob
Author: J. Erichsen
Author: H.J Griffiths
Author: C.M Harris
Author: Julie Owen

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