The University of Southampton
University of Southampton Institutional Repository
Warning ePrints Soton is experiencing an issue with some file downloads not being available. We are working hard to fix this. Please bear with us.

Palliative and end of life care for a child: Understanding parents’ coping strategies

Palliative and end of life care for a child: Understanding parents’ coping strategies
Palliative and end of life care for a child: Understanding parents’ coping strategies

Aim

Understanding of coping strategies that parents use before the death of their child is crucial and will enable us to best provide support. The current study aimed to explore parents’ coping strategies, and map these onto an existing theoretical framework.
Methods

Bereaved parents and parents of a child with a life‐limiting/threatening condition were interviewed to investigate coping strategies, recruited through Intensive Care Units (2 Neonatal, 2 Paediatric, 1 Paediatric Cardiac) and a children's hospice. Analysis focused on coping strategies and mapping these onto the framework.
Results

24 parents of 20 children were interviewed and identified. Parents use a variety of coping strategies (n = 25) such as humour, staying positive, advocating and staying strong for others, expressing emotions and preparing, while also living life to the full, supported by others. The themes were successfully mapped onto the theoretical framework, which focuses on the constructs of approach and avoidance, as well as coping for self and others.
Conclusion

The findings have provided a detailed account of the breadth and depth of coping strategies parents use, including those classed as avoidance. The strategies were successfully mapped onto the theoretical framework. Future research should investigate changes over times, and associations to negative long‐term outcomes.
child, coping, end of life, parent
0803-5253
Darlington, Anne-Sophie
472fcfc9-160b-4344-8113-8dd8760ff962
Randall, Duncan C
21b02c15-4d2c-4491-b4ae-e8008c1a093e
Leppard, Lisa
48a1e7e2-0d71-46c0-9f75-9ade90d22ebe
Koh, Michelle
61f021d3-8f62-4be2-93ae-629803634698
Darlington, Anne-Sophie
472fcfc9-160b-4344-8113-8dd8760ff962
Randall, Duncan C
21b02c15-4d2c-4491-b4ae-e8008c1a093e
Leppard, Lisa
48a1e7e2-0d71-46c0-9f75-9ade90d22ebe
Koh, Michelle
61f021d3-8f62-4be2-93ae-629803634698

Darlington, Anne-Sophie, Randall, Duncan C, Leppard, Lisa and Koh, Michelle (2020) Palliative and end of life care for a child: Understanding parents’ coping strategies. Acta Paediatrica. (doi:10.1111/apa.15429).

Record type: Article

Abstract


Aim

Understanding of coping strategies that parents use before the death of their child is crucial and will enable us to best provide support. The current study aimed to explore parents’ coping strategies, and map these onto an existing theoretical framework.
Methods

Bereaved parents and parents of a child with a life‐limiting/threatening condition were interviewed to investigate coping strategies, recruited through Intensive Care Units (2 Neonatal, 2 Paediatric, 1 Paediatric Cardiac) and a children's hospice. Analysis focused on coping strategies and mapping these onto the framework.
Results

24 parents of 20 children were interviewed and identified. Parents use a variety of coping strategies (n = 25) such as humour, staying positive, advocating and staying strong for others, expressing emotions and preparing, while also living life to the full, supported by others. The themes were successfully mapped onto the theoretical framework, which focuses on the constructs of approach and avoidance, as well as coping for self and others.
Conclusion

The findings have provided a detailed account of the breadth and depth of coping strategies parents use, including those classed as avoidance. The strategies were successfully mapped onto the theoretical framework. Future research should investigate changes over times, and associations to negative long‐term outcomes.

Text
Darlington Coping paper 03.06.2020 CLEAN VERSION - Accepted Manuscript
Download (179kB)

More information

Accepted/In Press date: 16 June 2020
e-pub ahead of print date: 21 June 2020
Keywords: child, coping, end of life, parent

Identifiers

Local EPrints ID: 443091
URI: http://eprints.soton.ac.uk/id/eprint/443091
ISSN: 0803-5253
PURE UUID: f2270a27-0807-42fe-bd2d-6aa6591ac8cc
ORCID for Duncan C Randall: ORCID iD orcid.org/0000-0002-8356-7373

Catalogue record

Date deposited: 10 Aug 2020 16:39
Last modified: 26 Nov 2021 05:57

Export record

Altmetrics

Contributors

Author: Duncan C Randall ORCID iD
Author: Lisa Leppard
Author: Michelle Koh

Download statistics

Downloads from ePrints over the past year. Other digital versions may also be available to download e.g. from the publisher's website.

View more statistics

Atom RSS 1.0 RSS 2.0

Contact ePrints Soton: eprints@soton.ac.uk

ePrints Soton supports OAI 2.0 with a base URL of http://eprints.soton.ac.uk/cgi/oai2

This repository has been built using EPrints software, developed at the University of Southampton, but available to everyone to use.

We use cookies to ensure that we give you the best experience on our website. If you continue without changing your settings, we will assume that you are happy to receive cookies on the University of Southampton website.

×