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The experience of lived time in people with dementia: a systematic meta-synthesis

The experience of lived time in people with dementia: a systematic meta-synthesis
The experience of lived time in people with dementia: a systematic meta-synthesis
Introduction
For people with dementia, lived time is important to understand, as the condition affects memory, perceptions of time, and life expectancy. The aim of this study was to locate, interpret, and synthesize the experience of lived time for people with dementia.

Method
This article presents a qualitative systematic meta-synthesis. The theoretical framework of lifeworlds by van Manen provided the context for the study. The Critical Appraisal Skills Programme criteria for qualitative studies were used to appraise the studies. Sixty-one qualitative research studies based on interviews with people with dementia were included in the review. The analysis followed the principles of interpretive synthesis.

Results
Four categories were revealed: (1) rooted in the past − “I am the same as before”; (2) focussing on the present − “Nobody has tomorrow”; (3) thinking about the future − “What is going to happen to me?”; and (4) changes in the experience of self over time − “I used to….” The latent overall meaning was expressed as “being engaged with the dimensions of time.”

Discussion/Conclusion
The experience of lived time is an active and important one, enabling people to manage the dementia journey. Future work involving people with dementia should foreground the experience of lived time.
1420-8008
435–455
Eriksen, Siren
fadf91d4-6057-4f7a-9d6b-fe0bd934bda9
Bartlett, Ruth
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Grov, Ellen Karine
cc272494-aa0d-45f2-b2cf-e2aea8f61074
Ibsen, Tanja Louise
acd3fa9b-ecf5-4156-9984-fd0cb5da5cb1
Telenius, Elisabeth Wiken
ad541459-ca91-4610-9151-389585a0863d
Rokstad, Anne Marie Mork
a2419e03-6348-4b18-bffa-83051868a88c
Eriksen, Siren
fadf91d4-6057-4f7a-9d6b-fe0bd934bda9
Bartlett, Ruth
b059d54d-9431-43a8-9d1d-19d35ab57ac3
Grov, Ellen Karine
cc272494-aa0d-45f2-b2cf-e2aea8f61074
Ibsen, Tanja Louise
acd3fa9b-ecf5-4156-9984-fd0cb5da5cb1
Telenius, Elisabeth Wiken
ad541459-ca91-4610-9151-389585a0863d
Rokstad, Anne Marie Mork
a2419e03-6348-4b18-bffa-83051868a88c

Eriksen, Siren, Bartlett, Ruth, Grov, Ellen Karine, Ibsen, Tanja Louise, Telenius, Elisabeth Wiken and Rokstad, Anne Marie Mork (2020) The experience of lived time in people with dementia: a systematic meta-synthesis. Dementia and Geriatric Cognitive Disorders, 49 (5), 435–455. (doi:10.1159/000511225).

Record type: Article

Abstract

Introduction
For people with dementia, lived time is important to understand, as the condition affects memory, perceptions of time, and life expectancy. The aim of this study was to locate, interpret, and synthesize the experience of lived time for people with dementia.

Method
This article presents a qualitative systematic meta-synthesis. The theoretical framework of lifeworlds by van Manen provided the context for the study. The Critical Appraisal Skills Programme criteria for qualitative studies were used to appraise the studies. Sixty-one qualitative research studies based on interviews with people with dementia were included in the review. The analysis followed the principles of interpretive synthesis.

Results
Four categories were revealed: (1) rooted in the past − “I am the same as before”; (2) focussing on the present − “Nobody has tomorrow”; (3) thinking about the future − “What is going to happen to me?”; and (4) changes in the experience of self over time − “I used to….” The latent overall meaning was expressed as “being engaged with the dimensions of time.”

Discussion/Conclusion
The experience of lived time is an active and important one, enabling people to manage the dementia journey. Future work involving people with dementia should foreground the experience of lived time.

Text
The experience of lived time in people with dementia a systematic meta-synthesis - Accepted Manuscript
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More information

Accepted/In Press date: 27 August 2020
e-pub ahead of print date: 11 November 2020

Identifiers

Local EPrints ID: 443924
URI: http://eprints.soton.ac.uk/id/eprint/443924
ISSN: 1420-8008
PURE UUID: 6b2379ef-f81c-4495-8125-7729c2ea7efa
ORCID for Ruth Bartlett: ORCID iD orcid.org/0000-0002-3412-2300

Catalogue record

Date deposited: 16 Sep 2020 16:40
Last modified: 17 Mar 2024 05:53

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Contributors

Author: Siren Eriksen
Author: Ruth Bartlett ORCID iD
Author: Ellen Karine Grov
Author: Tanja Louise Ibsen
Author: Elisabeth Wiken Telenius
Author: Anne Marie Mork Rokstad

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