The University of Southampton
University of Southampton Institutional Repository
Warning ePrints Soton is experiencing an issue with some file downloads not being available. We are working hard to fix this. Please bear with us.

Parents' perspectives on conflict in paediatric healthcare: a scoping review

Parents' perspectives on conflict in paediatric healthcare: a scoping review
Parents' perspectives on conflict in paediatric healthcare: a scoping review
Background Conflict in paediatric healthcare is becoming increasingly prevalent, in particular relation to paediatric end of life. This is damaging to patients, families, professionals and healthcare resources. Current research has begun to explore perspectives of healthcare professionals (HCPs), but the parental views on conflict are lacking.

Objectives This scoping review explores parental views on conflict during a child’s end of life. In addition, parental views are mapped onto HCPs’ views.

Methods A search was completed of the databases CINAHL, PubMed, Web of Science, Embase and Medline between 1997 and 2019, focused on parents of children with involvement with palliative or end-of-life care referring to conflict or disagreements.

Results The review found 10 papers that included parental views on conflict. Data on conflict were categorised into the following seven themes: communication breakdown, trust, suffering, different understanding of ‘best interest’, disagreements over treatment, spirituality and types of decision-making. In particular, parental expertise, perspectives on suffering and ways of making decisions were significant themes. A subset of themes mirror those of HCPs. However, parents identified views of conflict unique to their perspective.

Conclusions Parents identified important themes, in particular their perspective of what constitutes suffering and ‘best interest’. In addition, parents highlight the importance of being recognised as an expert.
palliative care, psychology
0003-9888
981-986
Parsons, Emily
053edc2b-a3f8-424c-91d1-3914ce8de5ce
Darlington, Anne-Sophie
472fcfc9-160b-4344-8113-8dd8760ff962
Parsons, Emily
053edc2b-a3f8-424c-91d1-3914ce8de5ce
Darlington, Anne-Sophie
472fcfc9-160b-4344-8113-8dd8760ff962

Parsons, Emily and Darlington, Anne-Sophie (2021) Parents' perspectives on conflict in paediatric healthcare: a scoping review. Archives of Disease in Childhood, 106 (10), 981-986, [archdischild-2020-320975]. (doi:10.1136/archdischild-2020-320975).

Record type: Article

Abstract

Background Conflict in paediatric healthcare is becoming increasingly prevalent, in particular relation to paediatric end of life. This is damaging to patients, families, professionals and healthcare resources. Current research has begun to explore perspectives of healthcare professionals (HCPs), but the parental views on conflict are lacking.

Objectives This scoping review explores parental views on conflict during a child’s end of life. In addition, parental views are mapped onto HCPs’ views.

Methods A search was completed of the databases CINAHL, PubMed, Web of Science, Embase and Medline between 1997 and 2019, focused on parents of children with involvement with palliative or end-of-life care referring to conflict or disagreements.

Results The review found 10 papers that included parental views on conflict. Data on conflict were categorised into the following seven themes: communication breakdown, trust, suffering, different understanding of ‘best interest’, disagreements over treatment, spirituality and types of decision-making. In particular, parental expertise, perspectives on suffering and ways of making decisions were significant themes. A subset of themes mirror those of HCPs. However, parents identified views of conflict unique to their perspective.

Conclusions Parents identified important themes, in particular their perspective of what constitutes suffering and ‘best interest’. In addition, parents highlight the importance of being recognised as an expert.

Text
Parents' perspectives on conflict in paediatric healthcare a scoping review - Accepted Manuscript
Download (145kB)

More information

Accepted/In Press date: 30 January 2021
e-pub ahead of print date: 16 February 2021
Keywords: palliative care, psychology

Identifiers

Local EPrints ID: 447047
URI: http://eprints.soton.ac.uk/id/eprint/447047
ISSN: 0003-9888
PURE UUID: e37c9173-2c88-4ed4-a9c8-9387a073bbfd

Catalogue record

Date deposited: 02 Mar 2021 17:31
Last modified: 25 Nov 2021 20:39

Export record

Altmetrics

Contributors

Author: Emily Parsons

Download statistics

Downloads from ePrints over the past year. Other digital versions may also be available to download e.g. from the publisher's website.

View more statistics

Atom RSS 1.0 RSS 2.0

Contact ePrints Soton: eprints@soton.ac.uk

ePrints Soton supports OAI 2.0 with a base URL of http://eprints.soton.ac.uk/cgi/oai2

This repository has been built using EPrints software, developed at the University of Southampton, but available to everyone to use.

We use cookies to ensure that we give you the best experience on our website. If you continue without changing your settings, we will assume that you are happy to receive cookies on the University of Southampton website.

×