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Parental perspective: the role of prostheses and prosthetics services in adjusting to a child's upper limb difference

Parental perspective: the role of prostheses and prosthetics services in adjusting to a child's upper limb difference
Parental perspective: the role of prostheses and prosthetics services in adjusting to a child's upper limb difference
Background: the impact of paediatric upper limb difference may extend beyond the child themselves to their parents and other family members. Previous research has found that feelings of shock, numbness and loss are common amongst parents and that peer support can be a buffer against stress. OBJECTIVE: The current study aimed to explore the experiences of parents of children with limb difference, and the role of services and prosthetic devices in these experiences.

Methods: nine parents of children with limb difference participated in either a group (n= 2) or individual (n= 7) interview.

Results: analysis of the interview transcripts revealed four themes – ‘grief and guilt’, ‘prosthesis as a tool for parental adjustment’, ‘support’ and ‘fun and humour’.

Conclusions: parents may employ coping strategies to help them adjust to their child’s limb difference, including use of a prosthesis, accessing support from statutory services and peers, and use of fun and humour within the family.
Upper limb prosthetics, paediatric prosthetics, parental experiences, qualitative research
1055-4181
45-51
Donovan-Hall, Margaret
5f138055-2162-4982-846c-5c92411055e0
Metcalf, Cheryl
09a47264-8bd5-43bd-a93e-177992c22c72
Sims, Tara
8ff100c3-1f4f-45ef-98f9-00facc22b246
Donovan-Hall, Margaret
5f138055-2162-4982-846c-5c92411055e0
Metcalf, Cheryl
09a47264-8bd5-43bd-a93e-177992c22c72
Sims, Tara
8ff100c3-1f4f-45ef-98f9-00facc22b246

Donovan-Hall, Margaret, Metcalf, Cheryl and Sims, Tara (2021) Parental perspective: the role of prostheses and prosthetics services in adjusting to a child's upper limb difference. Technology and Disability, 33 (1), 45-51. (doi:10.3233/TAD-200300).

Record type: Article

Abstract

Background: the impact of paediatric upper limb difference may extend beyond the child themselves to their parents and other family members. Previous research has found that feelings of shock, numbness and loss are common amongst parents and that peer support can be a buffer against stress. OBJECTIVE: The current study aimed to explore the experiences of parents of children with limb difference, and the role of services and prosthetic devices in these experiences.

Methods: nine parents of children with limb difference participated in either a group (n= 2) or individual (n= 7) interview.

Results: analysis of the interview transcripts revealed four themes – ‘grief and guilt’, ‘prosthesis as a tool for parental adjustment’, ‘support’ and ‘fun and humour’.

Conclusions: parents may employ coping strategies to help them adjust to their child’s limb difference, including use of a prosthesis, accessing support from statutory services and peers, and use of fun and humour within the family.

Text
Sims et al Parental perspective - Accepted Manuscript
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More information

Accepted/In Press date: 23 November 2020
e-pub ahead of print date: 24 February 2021
Keywords: Upper limb prosthetics, paediatric prosthetics, parental experiences, qualitative research

Identifiers

Local EPrints ID: 449245
URI: http://eprints.soton.ac.uk/id/eprint/449245
ISSN: 1055-4181
PURE UUID: b44275a1-6d3c-4b98-817a-c9e8d0ce8a9f
ORCID for Cheryl Metcalf: ORCID iD orcid.org/0000-0002-7404-6066

Catalogue record

Date deposited: 20 May 2021 16:32
Last modified: 26 Nov 2021 02:48

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Contributors

Author: Cheryl Metcalf ORCID iD
Author: Tara Sims

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