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Parent values and preferences underpinning treatment decision-making in poor-prognosis childhood cancer: a scoping review protocol

Parent values and preferences underpinning treatment decision-making in poor-prognosis childhood cancer: a scoping review protocol
Parent values and preferences underpinning treatment decision-making in poor-prognosis childhood cancer: a scoping review protocol
Introduction: parents of a child with cancer want to be involved in making treatment decisions for their child. Underpinning and informing these decisions are parents’ individual values and preferences. Parents of a child who has a poor prognosis cancer and who subsequently dies can experience decisional regret. To support parents, and potentially reduce decisional regret, identifying the values and preferences of parents who are making these treatment decisions may enhance the support that can be provided by healthcare professionals. An increased understanding will support future work in this area and identify research gaps that could strengthen support strategies in clinical practice. The aim of this scoping review is to explore parent values and preferences underpinning treatment decision making when their child is receiving cancer-directed therapy for a poor prognosis cancer.

Methods and analysis: the Joanna Briggs Institute scoping review methodology will be followed. An initial database search of CINHAL and MEDLINE will be conducted to analyse the keywords using subject headings and Medical Subject Headings terms. Articles will be initially screened on title and abstract. The reference and citation lists of the full-text articles to be included will be searched using Web of Science. Articles will be independently reviewed by two reviewers and any discrepancies discussed with a third reviewer. Data extracted will be presented in tabular, diagrams and descriptive summaries.

Ethics and dissemination: ethical approval is not required for this scoping review. This review will inform further research with parents to understand their values and preferences when making repeated treatment decisions when their child has a poor prognosis cancer. All outputs will be disseminated through peer-reviewed publications and conference presentations.
cancer pain, paediatric oncology, paediatric palliative care
2044-6055
e046284
Pearson, Helen
1a9dfc7a-f1fa-4152-a618-55a946e655db
Gibson, Faith
b537d483-3f20-4f15-a9b8-880758746728
Darlington, Anne-Sophie
472fcfc9-160b-4344-8113-8dd8760ff962
Pearson, Helen
1a9dfc7a-f1fa-4152-a618-55a946e655db
Gibson, Faith
b537d483-3f20-4f15-a9b8-880758746728
Darlington, Anne-Sophie
472fcfc9-160b-4344-8113-8dd8760ff962

Pearson, Helen, Gibson, Faith and Darlington, Anne-Sophie (2021) Parent values and preferences underpinning treatment decision-making in poor-prognosis childhood cancer: a scoping review protocol. BMJ Open, 11 (5), e046284, [e046284]. (doi:10.1136/bmjopen-2020-046284).

Record type: Review

Abstract

Introduction: parents of a child with cancer want to be involved in making treatment decisions for their child. Underpinning and informing these decisions are parents’ individual values and preferences. Parents of a child who has a poor prognosis cancer and who subsequently dies can experience decisional regret. To support parents, and potentially reduce decisional regret, identifying the values and preferences of parents who are making these treatment decisions may enhance the support that can be provided by healthcare professionals. An increased understanding will support future work in this area and identify research gaps that could strengthen support strategies in clinical practice. The aim of this scoping review is to explore parent values and preferences underpinning treatment decision making when their child is receiving cancer-directed therapy for a poor prognosis cancer.

Methods and analysis: the Joanna Briggs Institute scoping review methodology will be followed. An initial database search of CINHAL and MEDLINE will be conducted to analyse the keywords using subject headings and Medical Subject Headings terms. Articles will be initially screened on title and abstract. The reference and citation lists of the full-text articles to be included will be searched using Web of Science. Articles will be independently reviewed by two reviewers and any discrepancies discussed with a third reviewer. Data extracted will be presented in tabular, diagrams and descriptive summaries.

Ethics and dissemination: ethical approval is not required for this scoping review. This review will inform further research with parents to understand their values and preferences when making repeated treatment decisions when their child has a poor prognosis cancer. All outputs will be disseminated through peer-reviewed publications and conference presentations.

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More information

Accepted/In Press date: 26 April 2021
Published date: 13 May 2021
Keywords: cancer pain, paediatric oncology, paediatric palliative care

Identifiers

Local EPrints ID: 449315
URI: http://eprints.soton.ac.uk/id/eprint/449315
ISSN: 2044-6055
PURE UUID: a65e6931-380c-4f1d-8a38-456680199bd0
ORCID for Helen Pearson: ORCID iD orcid.org/0000-0001-7388-3981

Catalogue record

Date deposited: 24 May 2021 16:31
Last modified: 26 Nov 2021 03:17

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Contributors

Author: Helen Pearson ORCID iD
Author: Faith Gibson

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