Transition services for paediatric inflammatory bowel disease; a multicentre study of practice in the United Kingdom
Transition services for paediatric inflammatory bowel disease; a multicentre study of practice in the United Kingdom
OBJECTIVES: Patients with paediatric inflammatory bowel disease (IBD) constitute one of the largest cohorts requiring transition from paediatric to adult services. Standardised transition care improves short and long-term patient outcomes. This study aimed to detail the current state of transition services for IBD in the United Kingdom (UK). METHODS: We performed a nationwide study to ascertain current practice, facilities and resources for children and young people with IBD. Specialist paediatric IBD centres were invited to contribute data on: timing of transition/transfer of care; transition resources available including clinics, staff and patient information; planning for future improvement. RESULTS: Twenty of 21 (95%) of invited centres responded. Over 90% of centres began the transition process below 16 years of age and all had completed transfer to adult care at 18 years of age. The proportion of patients in the transition process at individual centres varied from 10% to 50%.Joint clinics were held in every centre, with a mean of 12.9 clinics per year. Adult and paediatric gastroenterologists attended at all sites. Availability of additional team members was patchy across the UK, with dietetic, psychological and surgical attendance available in <50% centres. A structured transition tool was used in 75% of centres. Sexual health, contraception and pregnancy were discussed by <60% of teams. CONCLUSIONS: This study provides real-world clinical data on UK-wide transition services. These data can be used to develop a national strategy to complement current transition guidelines, focused on standardising services whilst allowing for local implementation.
251-258
Ashton, James J.
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Narula, Priya
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Kiparissi, Fevronia
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Spray, Christine
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Wilson, David C.
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Tayler, Rachel
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Howarth, Lucy
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Torrente, Franco
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Deb, Protima
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Cameron, Fiona
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Muhammed, Rafeeq
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Paul, Thankam
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Epstein, Jenny
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Lawson, Maureen
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Maginnis, Janis
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Zamvar, Veena
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Fagbemi, Andrew
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Devadason, David
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Bhavsar, Hemant S.
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Kammermeier, Jochen
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Beattie, R. Mark
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1 August 2021
Ashton, James J.
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Narula, Priya
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Kiparissi, Fevronia
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Spray, Christine
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Wilson, David C.
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Tayler, Rachel
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Howarth, Lucy
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Torrente, Franco
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Deb, Protima
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Cameron, Fiona
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Muhammed, Rafeeq
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Paul, Thankam
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Epstein, Jenny
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Lawson, Maureen
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Maginnis, Janis
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Zamvar, Veena
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Fagbemi, Andrew
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Devadason, David
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Bhavsar, Hemant S.
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Kammermeier, Jochen
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Beattie, R. Mark
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Ashton, James J., Narula, Priya, Kiparissi, Fevronia, Spray, Christine, Wilson, David C., Tayler, Rachel, Howarth, Lucy, Torrente, Franco, Deb, Protima, Cameron, Fiona, Muhammed, Rafeeq, Paul, Thankam, Epstein, Jenny, Lawson, Maureen, Maginnis, Janis, Zamvar, Veena, Fagbemi, Andrew, Devadason, David, Bhavsar, Hemant S., Kammermeier, Jochen and Beattie, R. Mark
(2021)
Transition services for paediatric inflammatory bowel disease; a multicentre study of practice in the United Kingdom.
Journal of Pediatric Gastroenterology & Nutrition, 73 (2), .
(doi:10.1097/MPG.0000000000003148).
Abstract
OBJECTIVES: Patients with paediatric inflammatory bowel disease (IBD) constitute one of the largest cohorts requiring transition from paediatric to adult services. Standardised transition care improves short and long-term patient outcomes. This study aimed to detail the current state of transition services for IBD in the United Kingdom (UK). METHODS: We performed a nationwide study to ascertain current practice, facilities and resources for children and young people with IBD. Specialist paediatric IBD centres were invited to contribute data on: timing of transition/transfer of care; transition resources available including clinics, staff and patient information; planning for future improvement. RESULTS: Twenty of 21 (95%) of invited centres responded. Over 90% of centres began the transition process below 16 years of age and all had completed transfer to adult care at 18 years of age. The proportion of patients in the transition process at individual centres varied from 10% to 50%.Joint clinics were held in every centre, with a mean of 12.9 clinics per year. Adult and paediatric gastroenterologists attended at all sites. Availability of additional team members was patchy across the UK, with dietetic, psychological and surgical attendance available in <50% centres. A structured transition tool was used in 75% of centres. Sexual health, contraception and pregnancy were discussed by <60% of teams. CONCLUSIONS: This study provides real-world clinical data on UK-wide transition services. These data can be used to develop a national strategy to complement current transition guidelines, focused on standardising services whilst allowing for local implementation.
Text
Untracked_28_05_21_JJA_BIS paper
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Accepted/In Press date: 1 April 2021
Published date: 1 August 2021
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Publisher Copyright:
Copyright © 2021 by European Society for Pediatric Gastroenterology, Hepatology, and Nutrition and North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition.
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Local EPrints ID: 450783
URI: http://eprints.soton.ac.uk/id/eprint/450783
ISSN: 0277-2116
PURE UUID: 2b313ae2-ea29-4518-8f39-86be9edef433
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Date deposited: 11 Aug 2021 16:31
Last modified: 17 Mar 2024 06:46
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Contributors
Author:
Priya Narula
Author:
Fevronia Kiparissi
Author:
Christine Spray
Author:
David C. Wilson
Author:
Rachel Tayler
Author:
Lucy Howarth
Author:
Franco Torrente
Author:
Protima Deb
Author:
Fiona Cameron
Author:
Rafeeq Muhammed
Author:
Thankam Paul
Author:
Jenny Epstein
Author:
Maureen Lawson
Author:
Janis Maginnis
Author:
Veena Zamvar
Author:
Andrew Fagbemi
Author:
David Devadason
Author:
Hemant S. Bhavsar
Author:
Jochen Kammermeier
Author:
R. Mark Beattie
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