Antenatal counselling for prospective parents whose fetus has a neurological anomaly: part 1, experiences and recommendations for service design
Antenatal counselling for prospective parents whose fetus has a neurological anomaly: part 1, experiences and recommendations for service design
Prospective parents whose fetus is diagnosed with a neurological anomaly go through a complex range of emotions. They describe their discussions of antenatal counselling from health care professionals as focusing too much on the nature of the anomaly involving unintelligible medical terminology, when what they really want is a picture of the best- and worst-case scenarios. Whilst information on the level of risk for their fetus is important, it is not the parents’ primary concern. When statistics for risk are given, they may not be as well understood as the health care professionals think. This review discusses the published evidence on antenatal counselling and recommendations for explaining risk to parents of fetuses with neurological anomalies. From this data we make recommendations for the organization of antenatal counselling services.
14-22
Hart, Anthony R.
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Vollmer, Brigitte
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Howe, David
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Boxall, Sally
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Foulds, Nicola
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De Lacey, Patricia
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Vasudevan, Chakra
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Griffiths, Paul
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Piercy, Hilary
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January 2022
Hart, Anthony R.
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Vollmer, Brigitte
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Howe, David
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Boxall, Sally
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Foulds, Nicola
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De Lacey, Patricia
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Vasudevan, Chakra
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Griffiths, Paul
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Piercy, Hilary
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Hart, Anthony R., Vollmer, Brigitte, Howe, David, Boxall, Sally, Foulds, Nicola, De Lacey, Patricia, Vasudevan, Chakra, Griffiths, Paul and Piercy, Hilary
(2022)
Antenatal counselling for prospective parents whose fetus has a neurological anomaly: part 1, experiences and recommendations for service design.
Developmental Medicine & Child Neurology, 64 (1), .
(doi:10.1111/dmcn.15022).
Abstract
Prospective parents whose fetus is diagnosed with a neurological anomaly go through a complex range of emotions. They describe their discussions of antenatal counselling from health care professionals as focusing too much on the nature of the anomaly involving unintelligible medical terminology, when what they really want is a picture of the best- and worst-case scenarios. Whilst information on the level of risk for their fetus is important, it is not the parents’ primary concern. When statistics for risk are given, they may not be as well understood as the health care professionals think. This review discusses the published evidence on antenatal counselling and recommendations for explaining risk to parents of fetuses with neurological anomalies. From this data we make recommendations for the organization of antenatal counselling services.
Text
Fetal Counselling Review Part 1 R2
- Accepted Manuscript
More information
Accepted/In Press date: 19 July 2021
e-pub ahead of print date: 22 August 2021
Published date: January 2022
Additional Information:
Funding Information:
The authors have stated that they had no interests that might be perceived as posing a conflict or bias.
Publisher Copyright:
© 2021 Mac Keith Press.
Identifiers
Local EPrints ID: 450954
URI: http://eprints.soton.ac.uk/id/eprint/450954
ISSN: 0012-1622
PURE UUID: 3ae2710d-8789-4b23-a45c-99ad7b97d741
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Date deposited: 26 Aug 2021 16:32
Last modified: 17 Mar 2024 06:47
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Contributors
Author:
Anthony R. Hart
Author:
David Howe
Author:
Sally Boxall
Author:
Nicola Foulds
Author:
Patricia De Lacey
Author:
Chakra Vasudevan
Author:
Paul Griffiths
Author:
Hilary Piercy
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