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Antenatal counselling for families whose fetus has neurological anomalies: Part one –prospective parents’ experiences and recommendations for service design

Antenatal counselling for families whose fetus has neurological anomalies: Part one –prospective parents’ experiences and recommendations for service design
Antenatal counselling for families whose fetus has neurological anomalies: Part one –prospective parents’ experiences and recommendations for service design

Prospective parents whose fetus is diagnosed with a neurological abnormality go through a complex range of emotions. Their experiences of antenatal counselling from health care professionals is that the discussion focusses too much on the nature of the abnormality and involves unintelligible medical terminology, when they really want a picture of the best and worse-case scenarios instead. Whilst a figure to estimate the level of risk for their fetus is important, it is not prospective parents’ primary concern. When figures for risk are given, it is not certain they are understood as well as health care professionals think. This review discusses the published evidence on antenatal counselling and recommendations for explaining risk. From this data, we make recommendations for the organisation of antenatal counselling services.
0012-1622
Hart, Anthony R.
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Vollmer, Brigitte
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Howe, David
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Boxall, Sally
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Foulds, Nicola
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De Lacey, Patricia
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Vasudevan, Chakra
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Griffiths, Paul
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Piercy, Hilary
366c39be-d843-41c7-a93a-3a6aca840221
Hart, Anthony R.
56db1e01-fa34-4971-b55d-cf09c101c17b
Vollmer, Brigitte
044f8b55-ba36-4fb2-8e7e-756ab77653ba
Howe, David
3a4ff013-9aac-4e5f-bb15-67df52fc97fa
Boxall, Sally
31246d9e-2330-4adb-9154-e9e6cb1d74f5
Foulds, Nicola
cac95d17-52b4-470d-b201-4bb2f7587ee8
De Lacey, Patricia
323b66b6-7d77-429c-82be-ac67cef793a1
Vasudevan, Chakra
fe07d9e5-ad86-41c1-ac50-8902ac4d316b
Griffiths, Paul
964f37c3-b205-4405-94ce-d736ef817d9b
Piercy, Hilary
366c39be-d843-41c7-a93a-3a6aca840221

Hart, Anthony R., Vollmer, Brigitte, Howe, David, Boxall, Sally, Foulds, Nicola, De Lacey, Patricia, Vasudevan, Chakra, Griffiths, Paul and Piercy, Hilary (2021) Antenatal counselling for families whose fetus has neurological anomalies: Part one –prospective parents’ experiences and recommendations for service design. Developmental Medicine & Child Neurology. (doi:10.1111/dmcn.15022).

Record type: Review

Abstract


Prospective parents whose fetus is diagnosed with a neurological abnormality go through a complex range of emotions. Their experiences of antenatal counselling from health care professionals is that the discussion focusses too much on the nature of the abnormality and involves unintelligible medical terminology, when they really want a picture of the best and worse-case scenarios instead. Whilst a figure to estimate the level of risk for their fetus is important, it is not prospective parents’ primary concern. When figures for risk are given, it is not certain they are understood as well as health care professionals think. This review discusses the published evidence on antenatal counselling and recommendations for explaining risk. From this data, we make recommendations for the organisation of antenatal counselling services.

Text
Fetal Counselling Review Part 1 R2 - Accepted Manuscript
Restricted to Repository staff only until 22 August 2022.
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More information

Accepted/In Press date: 19 July 2021
e-pub ahead of print date: 22 August 2021

Identifiers

Local EPrints ID: 450954
URI: http://eprints.soton.ac.uk/id/eprint/450954
ISSN: 0012-1622
PURE UUID: 3ae2710d-8789-4b23-a45c-99ad7b97d741
ORCID for Brigitte Vollmer: ORCID iD orcid.org/0000-0003-4088-5336

Catalogue record

Date deposited: 26 Aug 2021 16:32
Last modified: 27 Aug 2021 01:41

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Contributors

Author: Anthony R. Hart
Author: David Howe
Author: Sally Boxall
Author: Nicola Foulds
Author: Patricia De Lacey
Author: Chakra Vasudevan
Author: Paul Griffiths
Author: Hilary Piercy

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