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Antenatal counselling for prospective parents whose fetus has a neurological anomaly: part 1, experiences and recommendations for service design

Antenatal counselling for prospective parents whose fetus has a neurological anomaly: part 1, experiences and recommendations for service design
Antenatal counselling for prospective parents whose fetus has a neurological anomaly: part 1, experiences and recommendations for service design

Prospective parents whose fetus is diagnosed with a neurological anomaly go through a complex range of emotions. They describe their discussions of antenatal counselling from health care professionals as focusing too much on the nature of the anomaly involving unintelligible medical terminology, when what they really want is a picture of the best- and worst-case scenarios. Whilst information on the level of risk for their fetus is important, it is not the parents’ primary concern. When statistics for risk are given, they may not be as well understood as the health care professionals think. This review discusses the published evidence on antenatal counselling and recommendations for explaining risk to parents of fetuses with neurological anomalies. From this data we make recommendations for the organization of antenatal counselling services.

0012-1622
14-22
Hart, Anthony R.
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Vollmer, Brigitte
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Howe, David
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Boxall, Sally
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Foulds, Nicola
cac95d17-52b4-470d-b201-4bb2f7587ee8
De Lacey, Patricia
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Vasudevan, Chakra
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Griffiths, Paul
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Piercy, Hilary
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Hart, Anthony R.
56db1e01-fa34-4971-b55d-cf09c101c17b
Vollmer, Brigitte
044f8b55-ba36-4fb2-8e7e-756ab77653ba
Howe, David
3a4ff013-9aac-4e5f-bb15-67df52fc97fa
Boxall, Sally
31246d9e-2330-4adb-9154-e9e6cb1d74f5
Foulds, Nicola
cac95d17-52b4-470d-b201-4bb2f7587ee8
De Lacey, Patricia
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Vasudevan, Chakra
fe07d9e5-ad86-41c1-ac50-8902ac4d316b
Griffiths, Paul
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Piercy, Hilary
366c39be-d843-41c7-a93a-3a6aca840221

Hart, Anthony R., Vollmer, Brigitte, Howe, David, Boxall, Sally, Foulds, Nicola, De Lacey, Patricia, Vasudevan, Chakra, Griffiths, Paul and Piercy, Hilary (2022) Antenatal counselling for prospective parents whose fetus has a neurological anomaly: part 1, experiences and recommendations for service design. Developmental Medicine & Child Neurology, 64 (1), 14-22. (doi:10.1111/dmcn.15022).

Record type: Review

Abstract

Prospective parents whose fetus is diagnosed with a neurological anomaly go through a complex range of emotions. They describe their discussions of antenatal counselling from health care professionals as focusing too much on the nature of the anomaly involving unintelligible medical terminology, when what they really want is a picture of the best- and worst-case scenarios. Whilst information on the level of risk for their fetus is important, it is not the parents’ primary concern. When statistics for risk are given, they may not be as well understood as the health care professionals think. This review discusses the published evidence on antenatal counselling and recommendations for explaining risk to parents of fetuses with neurological anomalies. From this data we make recommendations for the organization of antenatal counselling services.

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Fetal Counselling Review Part 1 R2 - Accepted Manuscript
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More information

Accepted/In Press date: 19 July 2021
e-pub ahead of print date: 22 August 2021
Published date: January 2022
Additional Information: Funding Information: The authors have stated that they had no interests that might be perceived as posing a conflict or bias. Publisher Copyright: © 2021 Mac Keith Press.

Identifiers

Local EPrints ID: 450954
URI: http://eprints.soton.ac.uk/id/eprint/450954
ISSN: 0012-1622
PURE UUID: 3ae2710d-8789-4b23-a45c-99ad7b97d741
ORCID for Brigitte Vollmer: ORCID iD orcid.org/0000-0003-4088-5336

Catalogue record

Date deposited: 26 Aug 2021 16:32
Last modified: 19 Oct 2022 04:03

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Contributors

Author: Anthony R. Hart
Author: David Howe
Author: Sally Boxall
Author: Nicola Foulds
Author: Patricia De Lacey
Author: Chakra Vasudevan
Author: Paul Griffiths
Author: Hilary Piercy

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