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Supporting families managing childhood eczema: developing and optimising Eczema Care Online using qualitative research

Supporting families managing childhood eczema: developing and optimising Eczema Care Online using qualitative research
Supporting families managing childhood eczema: developing and optimising Eczema Care Online using qualitative research
Background: childhood eczema is often poorly controlled due to under-use of emollients and topical corticosteroids. Parents/carers report practical and psychosocial barriers to managing their child’s eczema, including child resistance. Online interventions could potentially support parents/carers; however, rigorous research developing such interventions has been limited.

Aim: to develop an online behavioural intervention to help parents/carers manage and co-manage their child’s eczema. Design and setting: Intervention development using a theory-, evidence- and Person-Based Approach with qualitative research.

Methods: a systematic review and qualitative synthesis (32 studies) and interviews with parents/carers (N=30) were used to identify barriers and facilitators to effective eczema management, and a prototype intervention was developed. Think-aloud interviews with parents/carers (N=25) were then used to optimise the intervention to increase its acceptability and feasibility.

Results: qualitative research identified that parents/carers had concerns about using emollients and topical corticosteroids; incomplete knowledge and skills around managing eczema; and reluctance to transitioning to co-managing eczema with their child. Think-aloud interviews highlighted that while experienced parents/carers felt they knew how to manage eczema, some information about how to use treatments was still new. Techniques for addressing barriers included: providing a rationale explaining how emollients and topical corticosteroids work; demonstrating how to use treatments; and highlighting that the intervention provided new, up-to-date information.

Conclusions: parents/carers need support in effectively managing and co-managing their child’s eczema. The key output of this research is Eczema Care Online (ECO) for Families; an online intervention for parents/carers of children with eczema, which is being evaluated in a randomised trial.
Clinical (physical), dermatology, Patient Groups, Care of the elderly, Research Methods, qualitative research
0960-1643
Sivyer, Katy
c9831d57-7d6b-4bb6-bb3c-770ea7f9b116
Teasdale, Emma
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Greenwell, Kate
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Steele, Mary
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Ghio, Daniela
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Ridd, Matthew
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Roberts, Amanda
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Chalmers, Joanne
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Lawton, Sandra
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Langan, Sinéad
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Cowdell, Fiona
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Le Roux, Emma
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Wilczynska, Sylvia
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Williams, Hywel
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Thomas, Kim
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Yardley, Lucy
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Santer, Miriam
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Muller, Ingrid
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Sivyer, Katy
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Teasdale, Emma
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Greenwell, Kate
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Steele, Mary
dd7833c4-c04c-495c-aa9a-b23e01a89762
Ghio, Daniela
3883f706-2f5b-4607-a4ab-4d911dff9e55
Ridd, Matthew
2f15120c-d5fa-4f5d-bb86-21356e034df7
Roberts, Amanda
c4a5d206-49c3-4a07-8cfd-5bccf8c93b3b
Chalmers, Joanne
f41b7630-e3d1-488b-a633-be6ee711f84d
Lawton, Sandra
610566de-d907-4721-ac53-6ef72f9e708d
Langan, Sinéad
9a2cc0a1-3307-49df-996e-8429186923dd
Cowdell, Fiona
d97ffa1c-737c-4926-9271-1bd6f1c1dbaa
Le Roux, Emma
350def08-40cf-4ddf-a712-ac65cf42b2ce
Wilczynska, Sylvia
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Williams, Hywel
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Thomas, Kim
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Yardley, Lucy
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Santer, Miriam
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Muller, Ingrid
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Sivyer, Katy, Teasdale, Emma, Greenwell, Kate, Steele, Mary, Ghio, Daniela, Ridd, Matthew, Roberts, Amanda, Chalmers, Joanne, Lawton, Sandra, Langan, Sinéad, Cowdell, Fiona, Le Roux, Emma, Wilczynska, Sylvia, Williams, Hywel, Thomas, Kim, Yardley, Lucy, Santer, Miriam and Muller, Ingrid (2022) Supporting families managing childhood eczema: developing and optimising Eczema Care Online using qualitative research. British Journal of General Practice, 2021:0503. (doi:10.3399/BJGP.2021.0503).

Record type: Article

Abstract

Background: childhood eczema is often poorly controlled due to under-use of emollients and topical corticosteroids. Parents/carers report practical and psychosocial barriers to managing their child’s eczema, including child resistance. Online interventions could potentially support parents/carers; however, rigorous research developing such interventions has been limited.

Aim: to develop an online behavioural intervention to help parents/carers manage and co-manage their child’s eczema. Design and setting: Intervention development using a theory-, evidence- and Person-Based Approach with qualitative research.

Methods: a systematic review and qualitative synthesis (32 studies) and interviews with parents/carers (N=30) were used to identify barriers and facilitators to effective eczema management, and a prototype intervention was developed. Think-aloud interviews with parents/carers (N=25) were then used to optimise the intervention to increase its acceptability and feasibility.

Results: qualitative research identified that parents/carers had concerns about using emollients and topical corticosteroids; incomplete knowledge and skills around managing eczema; and reluctance to transitioning to co-managing eczema with their child. Think-aloud interviews highlighted that while experienced parents/carers felt they knew how to manage eczema, some information about how to use treatments was still new. Techniques for addressing barriers included: providing a rationale explaining how emollients and topical corticosteroids work; demonstrating how to use treatments; and highlighting that the intervention provided new, up-to-date information.

Conclusions: parents/carers need support in effectively managing and co-managing their child’s eczema. The key output of this research is Eczema Care Online (ECO) for Families; an online intervention for parents/carers of children with eczema, which is being evaluated in a randomised trial.

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SIVYER - BRIT J of GENERAL PRACTICE - Supporting families managing childhood eczema - Accepted Manuscript
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More information

Accepted/In Press date: 1 February 2022
Published date: 10 February 2022
Keywords: Clinical (physical), dermatology, Patient Groups, Care of the elderly, Research Methods, qualitative research

Identifiers

Local EPrints ID: 455181
URI: http://eprints.soton.ac.uk/id/eprint/455181
ISSN: 0960-1643
PURE UUID: 0df920d2-a004-4cd6-8684-30535dd93ecb
ORCID for Katy Sivyer: ORCID iD orcid.org/0000-0003-4349-0102
ORCID for Emma Teasdale: ORCID iD orcid.org/0000-0001-9147-193X
ORCID for Kate Greenwell: ORCID iD orcid.org/0000-0002-3662-1488
ORCID for Mary Steele: ORCID iD orcid.org/0000-0003-2595-3855
ORCID for Lucy Yardley: ORCID iD orcid.org/0000-0002-3853-883X
ORCID for Miriam Santer: ORCID iD orcid.org/0000-0001-7264-5260
ORCID for Ingrid Muller: ORCID iD orcid.org/0000-0001-9341-6133

Catalogue record

Date deposited: 14 Mar 2022 17:43
Last modified: 01 Apr 2022 01:45

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Contributors

Author: Katy Sivyer ORCID iD
Author: Emma Teasdale ORCID iD
Author: Kate Greenwell ORCID iD
Author: Mary Steele ORCID iD
Author: Daniela Ghio
Author: Matthew Ridd
Author: Amanda Roberts
Author: Joanne Chalmers
Author: Sandra Lawton
Author: Sinéad Langan
Author: Fiona Cowdell
Author: Emma Le Roux
Author: Sylvia Wilczynska
Author: Hywel Williams
Author: Kim Thomas
Author: Lucy Yardley ORCID iD
Author: Miriam Santer ORCID iD
Author: Ingrid Muller ORCID iD

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