Public trust and trustworthiness in biobanking: The need for more reflexivity

Samuel, Gabrielle, Broekstra, Reinder, Gille, Felix and Lucassen, Anneke (2022) Public trust and trustworthiness in biobanking: The need for more reflexivity. Biopreservation and biobanking, 20 (3), 291-296. (doi:10.1089/bio.2021.0109).

Record type: Article

Abstract

Low levels of public trust in biobanks are perceived to be a deterrent to participation and a threat to their sustainability. Acting in a "trustworthy" manner is seen to be one approach to ensuring public trust in biobanks. Striving to improve public trust in biobanks and prioritizing the need for institutional trustworthiness are both vital endeavors. However, there has been little discussion in the context of biobanking about the meaning of these two concepts, and the relationship between them. In this article, we argue that it is important to examine this, to ensure clarity around their meaning, as well as their relationship with each other as they apply to biobanking. We conclude by making a series of recommendations for biobanks.

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Final_B_and_B_trust_paper_14th_Sept - Accepted Manuscript

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e-pub ahead of print date: 16 February 2022

Published date: 1 June 2022

Additional Information: Funding Information: This study was supported by Wellcome under Grant No. 219629/Z/19/Z and the Digital Society Initiative, University of Zurich. As required by this funder, the author will apply a CC BY public copyright license to any author accepted article version arising from this submission. Publisher Copyright: © 2022, Mary Ann Liebert, Inc., publishers.

Keywords: Biobanking, Public trust, Trust, Trustworthiness