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myKinMatters: sharing genetic health information via an online tool

myKinMatters: sharing genetic health information via an online tool
myKinMatters: sharing genetic health information via an online tool
The result of an individual’s genomic test can clarify risks for close relatives, but research has shown that patients do not always communicate their results to those to whom it is relevant. Research suggests that certain groups of patients want more information and help through online sources. Our aim was to increase rates of communication by developing a Web app tool, making sharing genetic information easier.
Ballard, Lisa
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Dheensa, Sandeep
5b52aead-df70-4394-9e51-a92fc158af32
Weal, Mark
e8fd30a6-c060-41c5-b388-ca52c81032a4
Fenwick, Angela J
95a1f4fa-7f6f-4c07-a93b-9ea39c231c31
Lucassen, Anneke
2eb85efc-c6e8-4c3f-b963-0290f6c038a5
Ballard, Lisa
48a7b1af-4d2b-4ec7-8927-84361a3c62a9
Dheensa, Sandeep
5b52aead-df70-4394-9e51-a92fc158af32
Weal, Mark
e8fd30a6-c060-41c5-b388-ca52c81032a4
Fenwick, Angela J
95a1f4fa-7f6f-4c07-a93b-9ea39c231c31
Lucassen, Anneke
2eb85efc-c6e8-4c3f-b963-0290f6c038a5

Ballard, Lisa, Dheensa, Sandeep, Weal, Mark, Fenwick, Angela J and Lucassen, Anneke (2019) myKinMatters: sharing genetic health information via an online tool. The 51st European Society of Human Genetics (ESHG) Conference, , Milan, Italy. 16 - 19 Jun 2018.

Record type: Conference or Workshop Item (Other)

Abstract

The result of an individual’s genomic test can clarify risks for close relatives, but research has shown that patients do not always communicate their results to those to whom it is relevant. Research suggests that certain groups of patients want more information and help through online sources. Our aim was to increase rates of communication by developing a Web app tool, making sharing genetic information easier.

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ESHG Lisa Ballard 2018 Final
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More information

Published date: 3 July 2019
Venue - Dates: The 51st European Society of Human Genetics (ESHG) Conference, , Milan, Italy, 2018-06-16 - 2018-06-19

Identifiers

Local EPrints ID: 467669
URI: http://eprints.soton.ac.uk/id/eprint/467669
PURE UUID: ef0fd8be-682d-4d12-8cf6-ef2d262f4ff4
ORCID for Lisa Ballard: ORCID iD orcid.org/0000-0003-1017-4322
ORCID for Mark Weal: ORCID iD orcid.org/0000-0001-6251-8786
ORCID for Anneke Lucassen: ORCID iD orcid.org/0000-0003-3324-4338

Catalogue record

Date deposited: 19 Jul 2022 16:30
Last modified: 06 Nov 2024 02:48

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Contributors

Author: Lisa Ballard ORCID iD
Author: Sandeep Dheensa
Author: Mark Weal ORCID iD
Author: Angela J Fenwick
Author: Anneke Lucassen ORCID iD

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