myKinMatters: sharing genetic health information via an online tool

Ballard, Lisa, Dheensa, Sandeep, Weal, Mark, Fenwick, Angela J and Lucassen, Anneke (2019) myKinMatters: sharing genetic health information via an online tool. The 51st European Society of Human Genetics (ESHG) Conference, , Milan, Italy. 16 - 19 Jun 2018.

Record type: Conference or Workshop Item (Other)

Abstract

The result of an individual’s genomic test can clarify risks for close relatives, but research has shown that patients do not always communicate their results to those to whom it is relevant. Research suggests that certain groups of patients want more information and help through online sources. Our aim was to increase rates of communication by developing a Web app tool, making sharing genetic information easier.

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Published date: 3 July 2019

Venue - Dates: The 51st European Society of Human Genetics (ESHG) Conference, , Milan, Italy, 2018-06-16 - 2018-06-19

Related URLs:

https://www.nature.com/article...019-0405-6

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Identifiers

Local EPrints ID: 467669

URI: http://eprints.soton.ac.uk/id/eprint/467669

PURE UUID: ef0fd8be-682d-4d12-8cf6-ef2d262f4ff4

ORCID for Lisa Ballard:

orcid.org/0000-0003-1017-4322

ORCID for Mark Weal:

orcid.org/0000-0001-6251-8786

ORCID for Anneke Lucassen:

orcid.org/0000-0003-3324-4338

Catalogue record

Date deposited: 19 Jul 2022 16:30

Last modified: 17 Mar 2024 03:37

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Contributors

Author: Lisa Ballard

Author: Sandeep Dheensa

Author: Mark Weal

Author: Angela J Fenwick

Author: Anneke Lucassen

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