A proposal to embed Patient and Public Involvement within qualitative data collection and analysis phases of a Primary Care based implementation study
A proposal to embed Patient and Public Involvement within qualitative data collection and analysis phases of a Primary Care based implementation study
Background
Patient and public involvement (PPI) is increasingly seen as essential to health service research. There are strong moral and ethical arguments for good quality PPI. Despite the development of guidance aimed at addressing the inconsistent reporting of PPI activities within research, little progress has been made in documenting the steps taken to undertake PPI and how it influences the direction of a study. Without this information, there are minimal opportunities to share learnings across projects and strengthen future PPI practices. The aim of this paper is to present details on the processes and activities planned to integrate PPI into the qualitative research component of a mixed-methods, multi-site study evaluating the implementation of a smart template to promote personalised primary care for patients with multiple long-term conditions.
Methods
This proposal describes the processes and activities planned to integrate PPI into the development and piloting of qualitative data collection tools (topic guides for both practice staff and patients) and a tailored data analysis package developed for PPI members incorporating broad concepts and specific methods of qualitative data analysis.
Discussion
Outputs relating to PPI activity may include clear, concise and suitably worded topic guides for qualitative interviews. Piloting of the topic guides via mock interviews will further develop researchers’ skills including sensitisation to the experiences of participants being interviewed. Working with PPI members when analysing the qualitative data aims to provide reciprocal learning opportunities and may contribute to improving the overall rigour of the data analysis. The intent of publishing proposed PPI activities within this project is to inform the future delivery of high quality PPI.
Data analysis, Data collection, Patient and public involvement, Qualitative
Moult, Alice
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McGrath, Carmel
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Lippiett, Kate
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Coope, Caroline
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Chilcott, Simon
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Mann, Cindy
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Evans, Nicola
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Turner, Andrew
deb606b8-c47e-40ee-9007-3eef16721bab
Dziedic, Krysia
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Portillo Vega, Maria Carmen
f913b5c5-b949-48f2-b1d0-eb7505484d5c
Johnson, Rachel
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31 May 2023
Moult, Alice
c9c2fc50-3e01-4a71-9f49-5f6416439392
McGrath, Carmel
abc52bd6-5e58-4712-bac0-c6a7913134df
Lippiett, Kate
35184a9f-cf3c-49cc-ae6b-7b92f6ead7ee
Coope, Caroline
971a9b96-d0ef-4e0b-a34c-9f9d954096ec
Chilcott, Simon
683c21e9-b7da-47be-8fc1-7e1b6ff3bff3
Mann, Cindy
d269414f-2722-4484-bf71-25522becabb1
Evans, Nicola
beec858e-4506-4b99-919d-2ea662644849
Turner, Andrew
deb606b8-c47e-40ee-9007-3eef16721bab
Dziedic, Krysia
53a573f0-14a0-45b5-bbbb-036027269bcd
Portillo Vega, Maria Carmen
f913b5c5-b949-48f2-b1d0-eb7505484d5c
Johnson, Rachel
9f4b136c-85d9-4487-a46e-9e32c32c4360
Moult, Alice, McGrath, Carmel, Lippiett, Kate, Coope, Caroline, Chilcott, Simon, Mann, Cindy, Evans, Nicola, Turner, Andrew, Dziedic, Krysia, Portillo Vega, Maria Carmen and Johnson, Rachel
(2023)
A proposal to embed Patient and Public Involvement within qualitative data collection and analysis phases of a Primary Care based implementation study.
Research Involvement and Engagement, 9 (1), [37].
(doi:10.1186/s40900-023-00440-7).
Abstract
Background
Patient and public involvement (PPI) is increasingly seen as essential to health service research. There are strong moral and ethical arguments for good quality PPI. Despite the development of guidance aimed at addressing the inconsistent reporting of PPI activities within research, little progress has been made in documenting the steps taken to undertake PPI and how it influences the direction of a study. Without this information, there are minimal opportunities to share learnings across projects and strengthen future PPI practices. The aim of this paper is to present details on the processes and activities planned to integrate PPI into the qualitative research component of a mixed-methods, multi-site study evaluating the implementation of a smart template to promote personalised primary care for patients with multiple long-term conditions.
Methods
This proposal describes the processes and activities planned to integrate PPI into the development and piloting of qualitative data collection tools (topic guides for both practice staff and patients) and a tailored data analysis package developed for PPI members incorporating broad concepts and specific methods of qualitative data analysis.
Discussion
Outputs relating to PPI activity may include clear, concise and suitably worded topic guides for qualitative interviews. Piloting of the topic guides via mock interviews will further develop researchers’ skills including sensitisation to the experiences of participants being interviewed. Working with PPI members when analysing the qualitative data aims to provide reciprocal learning opportunities and may contribute to improving the overall rigour of the data analysis. The intent of publishing proposed PPI activities within this project is to inform the future delivery of high quality PPI.
Text
339-A proposal to embed Patient and Public Involvement within qualitative data collection and analysis phases of a Primary Care based implementation study
- Accepted Manuscript
Text
s40900-023-00440-7
- Version of Record
More information
Accepted/In Press date: 24 April 2023
Published date: 31 May 2023
Additional Information:
Funding Information:
The wider Personalised Primary care for Patients with Multiple Long-term conditions (PP4M) study in which this Public and Patient Involvement (PPI) work is embedded is funded by the National Institute for Health and Care Research (NIHR) Applied Research Collaboration (ARC) Multiple Long-Term Conditions Implementation Programme’ and ‘This research was supported by NIHR ARC West, NIHR ARC Wessex, NIHR ARC West Midlands, NIHR ARC South West Peninsula. KD is part funded by the National Institute for Health and Care Research (NIHR) Applied Health Research Collaboration (ARC) West Midlands (NIHR 200165) and is an NIHR Senior Investigator (ID NIHR 200259). The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care. CM is funded by the School for Primary Care Research.
Funding Information:
The views expressed are those of the author(s) and not necessarily those of the National Health Service, the NIHR, or the Department of Health and Social Care. The authors acknowledge the help and support of each public contributor for their time and efforts throughout the duration of this work. Carmel McGrath acknowledges support from the NIHR Health Protection Research Unit in Behavioural Science and Evaluation at University of Bristol. Carmel McGrath’s time is supported by the National Institute for Health and Care Research Applied Research Collaboration West (NIHR ARC West).The authors would also like to acknowledge Professor Chris Salisbury one of the chief investigators for the PP4M study in which this PPI work is integrated.
Publisher Copyright:
© 2023, The Author(s).
Keywords:
Data analysis, Data collection, Patient and public involvement, Qualitative
Identifiers
Local EPrints ID: 477534
URI: http://eprints.soton.ac.uk/id/eprint/477534
ISSN: 2056-7529
PURE UUID: bd78f01f-aaf2-4f16-8b55-9372b858f693
Catalogue record
Date deposited: 07 Jun 2023 17:16
Last modified: 06 Jun 2024 02:06
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Contributors
Author:
Alice Moult
Author:
Carmel McGrath
Author:
Caroline Coope
Author:
Simon Chilcott
Author:
Cindy Mann
Author:
Nicola Evans
Author:
Andrew Turner
Author:
Krysia Dziedic
Author:
Rachel Johnson
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