Psychometric properties of the Living with long term conditions scale in an English-speaking population living with long term conditions in the UK
Psychometric properties of the Living with long term conditions scale in an English-speaking population living with long term conditions in the UK
Objective To present the psychometric properties of the living with long-term condition (LwLTCs) scale in an English-speaking population of people with different LTCs. Design An observational and cross-sectional study, with retest was conducted. Psychometric properties including feasibility, internal consistency, confirmatory factor analysis, reproducibility and content validity were tested. Setting The study took place across the UK via primary care surgeries and voluntary organisations, between December 2021 and June 2022. Participants The study included 577 patients living with different LTCs, as chronic obstructive pulmonary disease, arthritis, chronic heart failure, Parkinson's disease, chronic kidney disease and type 2 diabetes mellitus. Inclusion criteria included: (a) having been diagnosed with one or more of the conditions; (b) being able to read, understand and answer written questionnaires; (c) being fluent in English and (d) being able to provide written informed consent. Patients were involved in the design and pilot study of the scale. Results A total sample of 577 people with an age range of 37-97 years (98±9.65) were recruited. Internal consistency of the total 26-item LwLTCs scale score was excellent (ordinal alpha=0.90) but confirmatory factor analysis showed better fit indices (Normed Fit Index=0.96; standardised root mean square residual=0.051; Goodness of Fit Index=0.98) for a 20-item LwLTCs scale. Conclusions A shorter version of the LwLTCs scale, with just 20 items and with excellent psychometric properties, is recommended. Having a short scale is key when considering the implementation of the scale in clinical practice to develop person-centred pathways and more comprehensive care plans.
Chronic Disease, Nursing Care, Observational Study, Patient Reported Outcome Measures, Patient-Centered Care
e077978
Ambrosio, Leire
0a21749c-3817-49de-bf15-0ea9233ecc5c
Hislop-Lennie, Kelly
4489bd0e-403e-4636-baf9-606762504ce4
Serrano-Fuentes, Nestor
a61ca307-6fd1-42c9-9d81-315f4027f4aa
Driessens, Corine
59335f14-4ead-4692-9969-7ed9cc1ccf08
Portillo, Mari Carmen
f913b5c5-b949-48f2-b1d0-eb7505484d5c
10 January 2024
Ambrosio, Leire
0a21749c-3817-49de-bf15-0ea9233ecc5c
Hislop-Lennie, Kelly
4489bd0e-403e-4636-baf9-606762504ce4
Serrano-Fuentes, Nestor
a61ca307-6fd1-42c9-9d81-315f4027f4aa
Driessens, Corine
59335f14-4ead-4692-9969-7ed9cc1ccf08
Portillo, Mari Carmen
f913b5c5-b949-48f2-b1d0-eb7505484d5c
Ambrosio, Leire, Hislop-Lennie, Kelly, Serrano-Fuentes, Nestor, Driessens, Corine and Portillo, Mari Carmen
(2024)
Psychometric properties of the Living with long term conditions scale in an English-speaking population living with long term conditions in the UK.
BMJ Open, 14 (1), , [e077978].
(doi:10.1136/bmjopen-2023-077978).
Abstract
Objective To present the psychometric properties of the living with long-term condition (LwLTCs) scale in an English-speaking population of people with different LTCs. Design An observational and cross-sectional study, with retest was conducted. Psychometric properties including feasibility, internal consistency, confirmatory factor analysis, reproducibility and content validity were tested. Setting The study took place across the UK via primary care surgeries and voluntary organisations, between December 2021 and June 2022. Participants The study included 577 patients living with different LTCs, as chronic obstructive pulmonary disease, arthritis, chronic heart failure, Parkinson's disease, chronic kidney disease and type 2 diabetes mellitus. Inclusion criteria included: (a) having been diagnosed with one or more of the conditions; (b) being able to read, understand and answer written questionnaires; (c) being fluent in English and (d) being able to provide written informed consent. Patients were involved in the design and pilot study of the scale. Results A total sample of 577 people with an age range of 37-97 years (98±9.65) were recruited. Internal consistency of the total 26-item LwLTCs scale score was excellent (ordinal alpha=0.90) but confirmatory factor analysis showed better fit indices (Normed Fit Index=0.96; standardised root mean square residual=0.051; Goodness of Fit Index=0.98) for a 20-item LwLTCs scale. Conclusions A shorter version of the LwLTCs scale, with just 20 items and with excellent psychometric properties, is recommended. Having a short scale is key when considering the implementation of the scale in clinical practice to develop person-centred pathways and more comprehensive care plans.
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Accepted/In Press date: 12 December 2023
e-pub ahead of print date: 10 January 2024
Published date: 10 January 2024
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© 2024 Author(s). Published by BMJ.
© Author(s) (or their employer(s)) 2024. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.
Keywords:
Chronic Disease, Nursing Care, Observational Study, Patient Reported Outcome Measures, Patient-Centered Care
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Local EPrints ID: 485847
URI: http://eprints.soton.ac.uk/id/eprint/485847
ISSN: 2044-6055
PURE UUID: 03cc43bd-eb00-4720-9fa5-3cf5c46610d7
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Date deposited: 20 Dec 2023 17:38
Last modified: 12 Apr 2024 02:06
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