Psychometric properties of the living with long term conditions scale in an English-speaking population living with long term conditions in the UK
Psychometric properties of the living with long term conditions scale in an English-speaking population living with long term conditions in the UK
Objective: to present the psychometric properties of the living with long-term condition (LwLTCs) scale in an English-speaking population of people with different LTCs.
Design: an observational and cross-sectional study, with retest was conducted. Psychometric properties including feasibility, internal consistency, confirmatory factor analysis, reproducibility and content validity were tested.
Setting: the study took place across the UK via primary care surgeries and voluntary organisations, between December 2021 and June 2022.
Participants: the study included 577 patients living with different LTCs, as chronic obstructive pulmonary disease, arthritis, chronic heart failure, Parkinson's disease, chronic kidney disease and type 2 diabetes mellitus. Inclusion criteria included: (a) having been diagnosed with one or more of the conditions; (b) being able to read, understand and answer written questionnaires; (c) being fluent in English and (d) being able to provide written informed consent. Patients were involved in the design and pilot study of the scale.
Results: a total sample of 577 people with an age range of 37-97 years (98±9.65) were recruited. Internal consistency of the total 26-item LwLTCs scale score was excellent (ordinal alpha=0.90) but confirmatory factor analysis showed better fit indices (Normed Fit Index=0.96; standardised root mean square residual=0.051; Goodness of Fit Index=0.98) for a 20-item LwLTCs scale.
Conclusions: a shorter version of the LwLTCs scale, with just 20 items and with excellent psychometric properties, is recommended. Having a short scale is key when considering the implementation of the scale in clinical practice to develop person-centred pathways and more comprehensive care plans.
Chronic Disease, Nursing Care, Observational Study, Patient Reported Outcome Measures, Patient-Centered Care
Ambrosio, Leire
0a21749c-3817-49de-bf15-0ea9233ecc5c
Hislop-Lennie, Kelly
4489bd0e-403e-4636-baf9-606762504ce4
Serrano-Fuentes, Nestor
a61ca307-6fd1-42c9-9d81-315f4027f4aa
Driessens, Corine
59335f14-4ead-4692-9969-7ed9cc1ccf08
Portillo, Mari Carmen
f913b5c5-b949-48f2-b1d0-eb7505484d5c
10 January 2024
Ambrosio, Leire
0a21749c-3817-49de-bf15-0ea9233ecc5c
Hislop-Lennie, Kelly
4489bd0e-403e-4636-baf9-606762504ce4
Serrano-Fuentes, Nestor
a61ca307-6fd1-42c9-9d81-315f4027f4aa
Driessens, Corine
59335f14-4ead-4692-9969-7ed9cc1ccf08
Portillo, Mari Carmen
f913b5c5-b949-48f2-b1d0-eb7505484d5c
Ambrosio, Leire, Hislop-Lennie, Kelly, Serrano-Fuentes, Nestor, Driessens, Corine and Portillo, Mari Carmen
(2024)
Psychometric properties of the living with long term conditions scale in an English-speaking population living with long term conditions in the UK.
BMJ Open, 14 (1), [e077978].
(doi:10.1136/bmjopen-2023-077978).
Abstract
Objective: to present the psychometric properties of the living with long-term condition (LwLTCs) scale in an English-speaking population of people with different LTCs.
Design: an observational and cross-sectional study, with retest was conducted. Psychometric properties including feasibility, internal consistency, confirmatory factor analysis, reproducibility and content validity were tested.
Setting: the study took place across the UK via primary care surgeries and voluntary organisations, between December 2021 and June 2022.
Participants: the study included 577 patients living with different LTCs, as chronic obstructive pulmonary disease, arthritis, chronic heart failure, Parkinson's disease, chronic kidney disease and type 2 diabetes mellitus. Inclusion criteria included: (a) having been diagnosed with one or more of the conditions; (b) being able to read, understand and answer written questionnaires; (c) being fluent in English and (d) being able to provide written informed consent. Patients were involved in the design and pilot study of the scale.
Results: a total sample of 577 people with an age range of 37-97 years (98±9.65) were recruited. Internal consistency of the total 26-item LwLTCs scale score was excellent (ordinal alpha=0.90) but confirmatory factor analysis showed better fit indices (Normed Fit Index=0.96; standardised root mean square residual=0.051; Goodness of Fit Index=0.98) for a 20-item LwLTCs scale.
Conclusions: a shorter version of the LwLTCs scale, with just 20 items and with excellent psychometric properties, is recommended. Having a short scale is key when considering the implementation of the scale in clinical practice to develop person-centred pathways and more comprehensive care plans.
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Accepted/In Press date: 12 December 2023
e-pub ahead of print date: 10 January 2024
Published date: 10 January 2024
Keywords:
Chronic Disease, Nursing Care, Observational Study, Patient Reported Outcome Measures, Patient-Centered Care
Identifiers
Local EPrints ID: 485847
URI: http://eprints.soton.ac.uk/id/eprint/485847
ISSN: 2044-6055
PURE UUID: 03cc43bd-eb00-4720-9fa5-3cf5c46610d7
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Date deposited: 20 Dec 2023 17:38
Last modified: 14 Apr 2026 02:04
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Author:
Leire Ambrosio
Author:
Kelly Hislop-Lennie
Author:
Nestor Serrano-Fuentes
Author:
Corine Driessens
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